Quantcast December 2013 | NFCA
Skip Navigation Links
 
December 2013

December 2013                                                                                                                    Subscribe now

Alice BastNote from Alice

NFCA Founder & President

Highlights from 2013

At the end of every year, I find myself thinking of all the progress we have made as the gluten-free community.  I never cease to be amazed by how much of a difference we can make together!  While there were many events and milestones reached this year, there are a few that stand out as the biggest victories for me as a person living with celiac disease and as the President of the National Foundation for Celiac Awareness (NFCA).

NFCA Celebrates 10 Years of Restoring Health and Reclaiming Lives

Words truly cannot describe the excitement and immense pride I felt as NFCA celebrated its tenth anniversary.  In just 10 years, NFCA has succeeded in increasing celiac disease diagnoses and improving the quality of life of those on a lifelong gluten-free diet.  While there is still much work to be done to ensure people living with celiac disease and gluten sensitivity can eat without fear, we have made immense progress together.  We’ve gone from special ordering gluten-free food from outside the U.S. to having an official ruling from the FDA on gluten-free labeling and more gluten-free options than we can count.  There even are potential pharmaceutical treatments on the horizon.

FDA Rules on Gluten-Free Labeling

In August 2013, the U.S. Food and Drug Administration (FDA) officially ruled on gluten-free labeling, standardizing a definition for “gluten-free” on food packages.  This was a huge victory for the celiac disease community.  Not only was celiac disease and the gluten-free diet the center of attention in major news outlets, but it proved to the general public just how vital this lifestyle is to our health.  While the rule was met with mixed emotions from the community, one thing is for sure: The gluten-free community came together to push for labeling to keep us safe and our voices were heard.  Following the ruling, NFCA created free resources to make the ruling easier to understand.  Visit our dedicated FDA web section to access these resources.

NFCA Makes Major Strides in First-Ever Study of Gluten in Medication

In 2011, NFCA was awarded a two-year $50,000 grant to learn more about the potential effects of gluten in medications – the first grant ever given for researching this unexplored territory! We partnered with expert researchers to test gluten content in medications identified by the gluten-free community that seemed to cause a reaction.  This testing concluded in September and NFCA will be sending the final report to the FDA in the coming weeks.  Stay tuned for more news on this landmark study in 2014!

Advancing Research Initiatives

In addition to the gluten in medication study, NFCA is working to advance other areas of research.  This year, we examined our free educational program for primary care doctors, designed to educate them on celiac disease and to recognize the signs in their own practices.  After partnering with the Celiac Center at the Beth Israel Deaconess Medical Center (BIDMC) and the Mayo Clinic, NFCA found that 66% of doctors who took the course plan to incorporate celiac disease testing in the practice.  It’s amazing how much of a difference education can make!

The NFCA team is hard at work each and every day to make a significant difference in the lives of those living with gluten-related disorders. We’re making phenomenal progress, and rest assured, we won’t stop until everyone is aware of celiac disease and no one remains undiagnosed.  We are doing everything we can to help the gluten-free community live their lives to the fullest. 

As the year comes to a close, I can’t thank you enough for your support and for being a part of the NFCA community, whether you've been diagnosed for 10 years or 10 days.  2013 has been quite the eventful year and I can’t wait to see what 2014 holds for our community! 

To our GREAT health,

Alice Bast

Donate button

Back to top


Cooking with Oonagh

Gluten-Free Holiday Recipes

The holiday season is upon us once again!  As always, I am excited to share delicious gluten-free recipes for you to share with your family and friends.  While slightly unconventional for the holidays, these recipes are sure to be a hit!

mallow cookies
CHOCOLATE RASPBERRY MALLOW BARS

This recipe originally contained wheat flour, but I adapted it to meet my family’s gluten-free needs.  They’re delicious!


 


turkey meatballs
TURKEY MEATBALLS IN CURRIED MANGO GRILLE SAUCE

There are curry houses on almost every corner in London, so many of my favorite childhood dishes were infused with curry flavors.  This recipe was inspired by those dishes and is sure to add a different flavor to your holiday meal.


About Chef Oonagh Williams

Chef Oonagh WilliamsBritish-born award-winning chef Oonagh Williams has a culinary arts degree and was trained in London and Switzerland. Based in New Hampshire, Chef Oonagh began adapting meals to gluten-free versions after her son was diagnosed with gluten and lactose intolerance two years ago. To learn more, visit Chef Oonagh’s website at www.RoyalTemptations.com or ‘Like’ her at Gluten Free Cooking with Oonagh on Facebook.

Related Content:

 Back to top


Advertisement
Crunchmaster: Happy, Healthy, and gluten-free


Cook's Corner

Creating New Gluten-Free Holiday Traditions with Your Child
By Silvana Nardone

Get your gluten-free cooking and baking questions answered by the expert!  Have a question for Silvana?  E-mail Alicia at acarango@celiaccentral.org and your question could be answered in a future NFCA newsletter.

How can I make the transition to the gluten-free diet easier for my child during the holiday season?

The holidays are a time when food is the focus and this can be stressful for parents of children newly diagnosed with celiac disease or gluten sensitivity.  I know firsthand how worrisome that first gluten-free holiday can be!  I also know that new traditions can be made and new favorite recipes can be cooked or baked to perfection.  Here are my tips for making the transition easier for you and your child.

Shift the focus from food.

Baking goodies during the holidays is such a fun way to bring the family together, but it can cause some stress for mom and dad after a recent diagnosis.  Keep in mind that it’s ok to break away from the food focus and embrace other holiday activities.  You can color holiday-themed pictures with the kids, watch their favorite holiday movie, or craft new homemade decorations together.  Years from now when your kids look back on their childhood holiday traditions, they won’t be thinking of the type of cookie you baked, but rather the times you spent making memories.

Continue reading this article for more of Silvana's tips and the recipe for these Buttery Cut-Out Cookies with Royal Icing.

Butter Cut-Out Cookies

About Silvana Nardone

Silvana Nardone
Silvana Nardone is the editor-in-chief of the all-digital, gluten-free magazine, Easy Eats. Silvana is also the author of Cooking for Isaiah: Gluten-Free & Dairy-Free Recipes for Easy, Delicious Meals and publisher of Silvana's Kitchen, a blog that takes the guesswork out of how to feed a family with food allergies. Previously, she was the owner of a Brooklyn-based bakery, Fanciulla Specialty Foods, and the founding editor-in-chief of Every Day with Rachael Ray.

Related Content:

 Back to top


Top Research News of 2013

Research news preview

Celiac disease research is rapidly advancing and 2013 proved to be a big year for research news.  Below are NFCA’s picks for the top research headlines of the year.
 

  Back to top


“The Power of The Patient: Are You Ready?

By Kristin Voorhees, MA, NFCA Healthcare Relations Manager

Last month, NFCA President Alice Bast and I headed north to New York City to attend Partnering for Cures 2013, a conference hosted by FasterCures, a center of the Milken Institute and an action tank determined to remove barriers to medical progress.

Partnering for Cures brought together leaders from across sectors in medical research including academic institutions, technology innovators, philanthropists, nonprofit patient advocacy groups and the pharmaceutical industry to speed up the dialogues needed to drive solutions in healthcare and science. No matter their background, all participants shared this in common: an energy to spur change for patients. And, at the end of the day, aren’t we all patients?  

Alice Bast and Kristin Voorhees
NFCA President Alice Bast (left) and
Healthcare Relations Manager Kristin Voorhees
at Partnering for Cures.

After spending two days filled with lectures, meet and greets and presentations, the take home message that I consider to be the most relevant for patients with a gluten-related disorder is this: Each person makes a difference and it’s critical that patients understand their role in research. Here’s what we can do:

  • Empower patients: You truly can be the catalyst for change in medicine – it’s patients who have the urgent need to be cared for beyond current treatment and disease management options.
  • Harness patients: Let them contribute to “citizen science,” the rapidly growing field of public participation in scientific research.
  • Listen to patients: Leaders in medicine and science can move mountains if we truly understand the patient experience of navigating the lifecycle of chronic diseases.
  • Educate patients: Valuable information, aka “big data,” can be found by listening to patients and we need to help them understand the importance of sharing and collecting these experiences.
  • Consider future patients, too: Think beyond the present and consider the impact your participation in scientific research could have on a parent, child or sibling.

Now, you may be thinking, “How does this apply to celiac disease? We have a treatment – the gluten-free diet. What else do we need to think about?” And, I will assure you that there is plenty to think about!  

Once you become familiar with the ins and outs of the gluten-free diet, I encourage you to go one step further and seek out the field of science.

It’s more critical now than ever to understand how celiac disease works. We are on the cusp of a pharmaceutical revolution in celiac disease treatment. A vaccine, pill or other pharmaceutical treatment is no longer a pipe dream; it’s a very real possibility.

It’s time that we move beyond simply talking about the gluten-free diet to understanding both the root of the autoimmune condition and the scientific advances that are providing the opportunity to change the face of celiac disease. We as celiac disease patients have an incredible opportunity to participate in the development of treatments that could help millions of our peers.

Our goal at NFCA is to empower patients to take responsibility for their own health by providing the education and tools necessary to maximize their health and quality of life.

I encourage everyone to learn more by taking one or more of the following actions today:

 

  Back to top


Advertisement
CeliAction Study


Top Webinars of 2013

Webinar Banner

NFCA has become well known for our free monthly webinars, each focused on a different aspect of living with celiac disease, gluten sensitivity and the gluten-free diet.  The staff picked 5 webinars we highly recommend viewing.

  1. Understanding the FDA’s Gluten-Free Labeling Rule Part 1: What You Need to Know
    Featuring Tricia Thompson, MS, RD of The Gluten-Free Dietitian and  Nutrition Consultant Celiac Disease, Founder of Gluten Free Watchdog, and Matthew Cox, Marketing Director for Bob's Red Mill Natural Foods

  2. Gluten-Free Menu-Planning: Budget-Friendly Tips
    Featuring Kathleen Reale of Be Free for Me

  3. Kid’s Central Special: Packing the Gluten-Free Lunchbox
    Featuring Garrett Berdan, RD, LD, Chef

  4. Celiac Disease: Immunology 101 & the Drug Development Process
    Featuring Ken Kilgore, MS, PhD and Francisco Leon, MD, PhD of Janssen Pharmaceuticals

  5. Sex and the Celiac: A Focus on Reproductive Health
    Featuring Stephanie M. Moleski, MD, Assistant Professor of Medicine, Thomas Jefferson University Hospitals

Want more webinars?  Visit NFCA’s Webinar Archive today!

Back to top


NFCA's Top New Resources

2013 has been quite a busy year for the NFCA team!  We unveiled many new resources for the celiac disease and gluten sensitive communities this year.  Here are a few of our favorites:

The Research Opt-In

Researcher with MicroscopeAs celiac disease research advances and evolves, NFCA wants to ensure that our community remains up to date and aware of new and ongoing research opportunities.  That’s why we created the Research Opt-In feature.  Click the link above to opt-in and stay connected through our regular, targeted emails!

Gluten-Free Dining Tips Sheet

Dining Tips previewThis tip sheet walks you through important questions to help determine if a restaurant is able to safely accommodate your gluten-free needs.  It’s also a GREAT tool for educating restaurants on safe gluten-free food preparation so don’t forget to leave the tear-off with your check the next time you think an establishment needs gluten-free training.

Fuel the Family Toolkit

Toolkit preview
For Celiac Awareness Month in May, NFCA focused on fueling your family with the information needed to be proactive and get tested for celiac disease.  To help, we created the Fuel the Family toolkit, full of information and resources geared towards (you guessed it!) raising awareness.


 

2013 Gluten-Free College Student Toolkit

Toolkit Preview
This toolkit is a one-stop-shop for college students navigating campus foodservice while living gluten-free on campus, whether they’re newly diagnosed or gluten-free diet veterans.  Parents will find helpful tips and information here, too, on how to proactively work with the school’s foodservice team and ensure that your child can eat safely while at college.
 

What’s your favorite resource from NFCA?  Tell us on Facebook!

Back to top


Advertisement
Blue Diamond Gluten-free crackers: New Artisan Nut Thins


Top News Stories of 2013

Newspaper

Celiac disease, gluten sensitivity and the gluten-free diet are topics that pop up in news stories every day.  Here are NFCA’s picks for some of the top headlines of 2013.
 

Back to top


Top Gluten-Free Recipes of 2013

NFCA shares the Gluten-Free Recipe of the Week each Monday, so you can imagine how tough it was to narrow down so many recipes.  Try these yummy gluten-free recipes for yourself to determine your personal favorite!

Tomato Soup with Eggplant

Tomato Soup with Eggplant
from Gluten-Free Choices

 

Asparagus Risotto with Spring Pea Pesto

Asparagus Risotto with Spring Pea Pesto
from Sherrie Scaglione of With Food + Love

 

Spaghetti with Capers & Arugula

Warm Spaghetti with Capers and Arugula
from Chef Simon Clarke and Allergic Living

 

Beer Batter and Herb and Cheese Stuffed Squash Blossoms

Beer Batter and Herb and Cheese Stuffed Squash Blossoms
from Bard’s Beer 

 

Vegetable Spring Rolls


Vegetable Spring Rolls with Rice Noodles
from Thai Kitchen


 

Crab Quesadilla

Crab Quesadilla
from Rudi’s Gluten-Free Bakery

 

Cornbread with Honey and Thyme


Cornbread with Honey and Thyme
from Jackie Ourman of C.A.F.E.

 

Coleslaw

Coleslaw
from Amy Green of Simply Sugar and Gluten-Free

 

breaded chicken

Baked Chicken or Fish
from Mary’s Gone Crackers

 

Cranberry Pecan Tart

Cranberry Pecan Tart
from Crunchmaster

 

Enjoy!

  Back to top


Gluten-Free Holiday Cooking with NFCA and Thai Kitchen

Gluten-Free Holiday Cooking

NFCA receives loads of questions about gluten-free cooking, especially during the holidays.  We’re joining forces with Thai Kitchen and top gluten-free bloggers and cooks to answer your questions so you can cook with confidence this holiday season.

NFCA gathered a pool of frequently asked questions about gluten-free cooking and divided them up between our team of bloggers:

  • Kristine Kidd, former Food Editor for Bon Appétit magazine
  • Silvana Nardone of Silvana’s Kitchen
  • Chandice Probst of Gluten-Free Frenzy
  • EA Stewart of The Spicy RD

Keep an eye out for the answers to the questions, which will be unveiled periodically throughout December.

www.CeliacCentral.org/Holiday

Bonus! Gluten-Free Holiday eCookbook

Thai Kitchen is sharing their favorite gluten-free recipes that you can try out at your next holiday party (or any day for that matter!).  When you download the eCookbook, you’ll automatically be entered into the gluten-free giveaway for your chance to win free products from Thai Kitchen.  Stay tuned for the download link to this holiday eCookbook! 

Back to top


Advertisement
Blue Diamond Gluten-free crackers: New Artisan Nut Thins


Gluten-Free Holiday Drink Recipes – Coming Soon!

Pom Punch
Just in time for the holiday season, NFCA and Cascade Ice are teaming up to bring you the newest printable guide – “Gluten-Free Holiday Drink Recipes.”  You’re in for a festive treat with these drinks made from Cascade Ice’s sodium-free and caffeine-free sparkling water.

Keep an eye on NFCA’s Printable Guide page for the new guide!

Back to top


Allergic Living Sneak Peek

Allergy-Friendly, Gluten-Free Gingerbread House
By Laurie Sadowski

Gingerbread house
Put on your favorite holiday tunes, and get your oven mitts ready! Building a gluten-free gingerbread house (sans top allergens) is a holly jolly way to enjoy the holiday season.
 

Download the eBooklet, complete with the gingerbread house recipe, instructions and house template.

Back to top


Dining Out

Restaurant Dining during the Holiday Season

People Dining Out

Once December hits, the rush of the holiday season is all around us.  With all the shopping, preparing meals and baking gluten-free cookies, things can get pretty busy – and fast!  The same rule applies to the restaurants experiencing an influx of people coming in for a meal, whether it’s in between shopping trips or for a family get-together.  Chances are, you’ll find yourself with an invitation to dinner at a restaurant that you may or may not be familiar with.  During the holiday rush, it’s more important than ever for people with celiac disease or gluten sensitivity to be diligent about vetting restaurants and their ability to serve a safe gluten-free meal.

Keep these tips in mind when dining out so you don’t miss a thing this holiday season!

Pick the restaurant if you can.
You know best from experience which restaurants can serve a safe gluten-free meal.  Offer to make the reservations for your group so you can feel more comfortable dining out.

Call ahead – but not during the dinner rush.
You’ll have a pretty good idea of a restaurant’s approach to serving gluten-free meals after having a conversation with the staff.  To ensure you have their full attention, call during slower times, when the chef is less likely to be busy making meals.

Make an earlier or later reservation.
Similar to the previous point, try to reserve a table slightly outside of peak dining hours.  This way, there will be less going on in the kitchen and the staff will have fewer distractions from keeping your meal safe from cross-contact.

Check out online reviews.
If you’re not able to make the reservation yourself, check out reviews from other gluten-free community members.  Their prior experience with the restaurant can help you make an informed decision about whether or not the establishment can meet your gluten-free needs.

For more helpful tips for dining out, download NFCA’s Dining Tip Sheet.  Be sure to mention GREAT Kitchens training to restaurants so they can learn how to safely serve gluten-free meals to the celiac disease and gluten sensitive community.  You can also view NFCA’s GREAT Kitchens list to see if there is a GREAT-trained restaurant near you.

Back to top


Advertisement
French Meadow Gluten-Free Bakery


Coming Attractions

U.S. News & World Report Twitter Chat: #GlutenChat
Wednesday, December 11, 2013 from 2 p.m. to 3 p.m. EST/11 a.m. to 12 p.m. PST

The National Foundation for Celiac Awareness (NFCA) is excited to participate as a celiac disease expert in an upcoming Twitter chat with U.S. News & World Report.  This #GlutenChat will cover a variety of topics, like who needs a gluten-free diet, common misconceptions, research and more!

Get more details about the chat from NFCA's Upcoming Events section.

Launch of the New & Improved "Getting Started: A Guide to Celiac Disease & the Gluten-Free Diet

Next week, NFCA will unveil the new and improved Getting Started Guide.  This updated guide, which contains more information and up-to-date resources, is a helpful tool both for those newly diagnosed with celiac disease and other gluten-related disorders and those looking to better manage their gluten-free diet.  We're so excited about the updated guide, we just couldn't wait to tell you about it! 

Sign up to receive an advance copy before it's released to the public.
Arrowhead Mills logo

Thanks to Arrowhead Mills for making this update a possibility!

2014 Webinar Schedule

Don't miss out on any of next year's free webinars from NFCA!  Sign up to receive an email notification when the 2014 Webinar Schedule becomes available, including the yet-to-be-announced date for "Understanding the FDA's Gluten-Free Labeling Rule Part 2: Focusing on Compliance."

Sign up now!

Back to top


Celiac Disease in the News

Celiac Disease in the News
by Alicia Carango, NFCA Communications Assistant

NFCA President Gives Keynote Speech at Central Pennsylvania Gluten-Free Expo

NFCA President Alice Bast was thrilled to be a part of the Central Pennsylvania Gluten-Free Expo.  Alice was the keynote speaker and presented her talk entitled “Shifting the Focus: A Proactive Agenda for Reclaiming Your Life.” Due to the large turnout for the event and her speech, Alice presented twice during the expo.  Featuring gluten-free vendors, educational information and plenty of samples to go around, the event was a huge success!

Read more about Alice’s presentation and the expo.

Gluten in Medications: Q&A with Congressman Tim Ryan

Congressman Tim Ryan sponsored the Gluten in Medicine Identification Act of 2012 and the Gluten in Medication Disclosure Act of 2013.  NFCA conducted a Q&A interview with Congressman Ryan to learn more about the proposed bill and his interest in medication labeling and celiac disease.

Read the Q&A with Congressman Ryan.

College Student Wins Funding for a Gluten-Free Safety App

Is another gluten-free app on the horizon?  It could be, thanks to Sam Hutchinson, a student at Southern Illinois University.  His idea for a gluten-free safety app made him the winner of the annual “CEO National Elevator Pitch” competition and earned him $500 towards the creation of his app.  Way to go, Sam!

Read more about the project.

Back to top


Hot Products

By Alicia Carango, NFCA Communications Assistant

Gluten Free Philly App

Michael Savett of the popular blog “Gluten Free Philly” has outdone himself with his new app.  This is one of the simplest, most intuitive apps I have found recently.  Want to find a gluten-free sandwich in the Philly area?  Just type “sandwich” into the convenient search bar and you’ll have a list of restaurants, including their phone numbers, addresses, websites and special notes, at your fingertips.  Not sure what you’re in the mood to eat?  Just click the “Near Me” button and the Gluten Free Philly app will pull up local restaurants with notes on which type of food they serve.  There’s a convenient link at the bottom of the app to take you directly to the Gluten Free Philly blog and you can even email Michael if you have questions.  While you should still be diligent about asking questions about the food preparation process and ingredients at every restaurant, your search for a good place to eat will be much easier with this new iPhone app!  You can find it in the app store.

Gluten-Free with Dr. Jeri

Another gluten-free cookbook has hit the market!  Gluten-Free with Dr. Jeri is an easy-to-follow cookbook that is ideal for people who are either just learning how to cook gluten-free or who are looking for new, easy recipes.   There is not an overabundance of ingredients needed to make the recipes and the vast majority are simple, recognizable ingredients like fresh or frozen vegetables, gluten-free pasta and herbs and spices.  Learn more from Dr. Jeri’s website.

Canyon Oats Gluten-Free Oatmeal

NFCA Vice President Jennifer North found this product at Natural Products Expo West and brought it back to Philadelphia for a product review.  It had a great maple flavor and I loved the convenience of heating the oatmeal in the container it comes in.  This oatmeal is only sold in local coffee shops, but you can order by the case online.  It’s not clear if all of Canyon Oats’ products are gluten-free from their website, so be sure to double check and ensure you’re purchasing a gluten-free version.  Head to www.CanyonOats.com to learn more. 

Back to top


*Stay informed between newsletter mailings!*
Check our News & Blogs for frequent updates >>

 

This newsletter is proudly sponsored by:

Crunchmasters
$1 off of Rudi's gluten-free stuffing
Enjoy Life
Allergy Smart muffins - Gluten, Dairy, Nut and Soy Free
FDA Patient Network Website: Get Informed. Get Involved.
Triumph dinning gluten-free restaurant guide
 

 

  • Have you or your family members been diagnosed yet?
    Complete our celiac symptoms checklist today to find out if you are at risk of having celiac disease / gluten intolerance. We can help improve the quality of your life!
  • Stay Informed!
    Join our monthly newsletter to receive news, updates, and tips for healthy gluten-free living and information about celiac disease. Sign-up for the monthly e-mail newsletter