National Foundation for Celiac Awareness

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www.CeliacCentral.org
Editorial Comments:
Vanessa Maltin
Editor@CeliacCentral.org

CeliacCentral

Volume 3 Issue 2
February 2008
February 2008 Printable PDF


Newsletter Articles:

NOTE FROM ALICE
NFCA Executive Director

Alice Bast CELIAC TESTING IMPROVES ROMANCE

A well-researched finding shows conclusively that celiac testing increases romance across the country...

Couples everywhere contributed to this research. Given a short list of potentially romantic things, they were asked which ones of them would actually obstruct romantic feelings and endeavors.

Some sample lists included:

  1. Dinner at your favorite sushi restaurant, his and her kimono's, a handwritten poem gastrointestinal distress.
  2. Twin heart shaped filet Mignons, a pair of Claddagh Rings, violin music, incessant diarrhea.
  3. A picnic at home by a fire, cheese, salad, fruit, wine, a small brand name jewelry box, and headaches with great fatigue.

Not surprisingly, gastrointestinal distress, incessant diarrhea, gas and headaches with great fatigue were overwhelmingly cited as a detriment to romance.

Luckily, no one has to suffer needlessly, testing can show whether these are symptoms of celiac disease and then changes in diet —GOING GLUTEN FREE-can eliminate these symptoms.

The lesson of all this is clear, To keep romance strong in America, Get tested for Celiac! Every Valentine needs his or her day, even if they suffer from Celiac.

Top Three Reasons to get your loved ones tested for Valentine's Day:

  1. Nothing Says "I LOVE YOU" like not hogging the bathroom 10 times a day
  2. Most Chocolate is Gluten Free
  3. It's easier to cuddle when you don't have gas

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BEYOND RICE CAKES
Celiac Disease Resources: NFCA A Wealth of Information

By Vanessa Maltin
NFCA Director of Outreach & Programming

Are you a newly diagnosed celiac patient? Have you been diagnosed with celiac for what feels like a million years and are still looking for help? To help all patients with celiac disease and of course their family and friends, the National Foundation for Celiac Awareness has worked tirelessly to develop a repertoire of resources that can help everyone! So come one and come all to www.CeliacCentral.org. Whether you are a child going to school, a parent trying to plan a gluten-free birthday party, a young adult, college student, adult, seasoned chef, doctor or dietitian, there is information waiting for you!

Symptoms Checklist. Do you think you may have celiac disease? Are you trying to get a family member or friend tested? If so, the NFCA symptoms checklist is the perfect place to start. Simply click on the various symptoms and receive a printer-friendly form to take to a doctor. The form provides you with the latest information on celiac testing, including the blood test and small intestine biopsy. Give this form to your doctor to be sure he orders the correct tests! Not only is the symptoms checklist a tool for you or your loved ones to get diagnosed, but also the responses collected are helping the NFCA correlate symptoms to diagnosis. This data will help all of us better understand the disease and how it affects our bodies. www.DoIHaveCeliac.org

Celiac Survival Guide. Are you already diagnosed with celiac disease and look for help with managing your daily gluten-free diet? The NFCA Celiac Disease Survival Guide is a comprehensive guide for living a happy and healthy gluten-free lifestyle. The guide provides suggestions for food choices during the early healing process and also explores the fast-expanding marketplace. There is even information about pizza and beer, birthday party planning and the best tasting products on the market! Medical tips are also provided, as well as a step-by-step guide for ensuring ongoing health. www.celiaccentral.org/What_is_Celiac_/Celiac_Survival_Guide/416/

Gluten in Medications. Do you know all of the ingredients in all of the medicines that you take? Probably not! Current United States regulations do NOT require manufacturers to label the inactive ingredients in drugs. These inactive substances are called excipients and can be any one of a number of starches including wheat, corn, potato or tapioca. To learn all about the inactive ingredients in medications, download this short and simple flyer that the NFCA developed with the help of the American Society of Health-System Pharmacists. You can download an extra copy to give to your local pharmacist as well. www.celiaccentral.org/What_is_Celiac_/Gluten_in_Medication/434/

School Lunches. Are you the parent of a child with celiac? If so, this resource is for you! With the help of the United States Department of Agriculture, the NFCA developed guidelines to help children and parents navigate their school's meal program. The guidelines explain federal laws and provide step-by-step instructions for getting a child special gluten-free meals at school. www.celiaccentral.org/What_is_Celiac_/School_Lunches/464/

Related Diseases. Celiac disease is directly related to several other diseases and conditions. The NFCA has worked with leading researchers and organizations to provide the latest information on how celiac disease and the gluten-free diet is related to these conditions. Diseases include: Dermatitis Herpetiformis, Type 1 Diabetes, Thyroid Disease, Infertility, Osteoporosis, Depression, Sjogren's Disease, Juvenile Idiopathic Arthritis, Intestinal Cancer, Peripheral Neuropathy, Down Syndrome, Turner Syndrome, William Syndrome, Liver disease and migraine headaches. www.celiaccentral.org/What_is_Celiac_/Related_Diseases/98/

Gluten-Free Cooking Sprees. Mark your calendars and sharpen your knives! If you love food, be sure to check the NFCA website for a Gluten-Free Cooking Spree near you! Watch top doctors, chefs and dietitians compete to cook the best gluten-free food! And, the best part is that you get to eat it too! Cities for 2008 include San Francisco, St. Louis, Washington, DC, Buffalo, Boston and West Palm Beach. www.celiaccentral.org/Events/Gluten_Free_Cooking_Sprees/331/

Cooking Videos. Watch NFCA's Gluten-Free Cooking Show Alternative Appetites 24/7 on the website. I'll teach you to cook delicious food that no one will ever guess is gluten-free! All of the recipes are super easy and even a college boy could master these techniques! Current episodes feature pizza, risotto and of course the Brazilian Cheesebread Company. www.celiaccentral.org/Other/Alternative_Appetites_1/466/

These are just some of the amazing resources available at the National Foundation for Celiac Awareness. Be sure to visit www.CeliacCentral.org to see even more fabulous documents and articles that can help you live the fullest and most delicious gluten-free life!

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ASK-THE-CHEF
Coconuts: A Gem for Gluten Free Cooking

By Edgar Steele
NFCA Chef Spokesman

"Put a lime in the Coke you nut!" That is one of my personal favorite uses for the fruit that the Coke folks so brilliantly twisted to sound fun. Coconut is a fruit from the coconut palm, which grows predominantly in tropical areas of the world. Its versatility yields it to several forms and progressive uses, including milk, dried flakes and water; all from which thousands of traditional recipes and rituals are based. And among the thousands of uses and high level of economic importance this fruit and its parent tree carries, the best part is… it's delicious!

Surprisingly and contrary to popular belief, almost every part of the coconut-bearing palm tree is edible, with the remaining parts proving useful for a variety of applications.

Aside from the culinary uses most of us think of when the coconut comes to mind, there are several other interesting ways it is used in society. A single palm tree can grow up to 75 coconuts per year, which heightens the economic stability of the tropical areas it grows in. A temperature of 70 degrees F is necessary for proper growth of the fruits, while 81 degrees F is ideal for premium quality coconuts. The dark brown outer husk or "coir" is used in many crafts such as brushes, ropes, mats and furniture stuffing. The leaves of the palm tree can be used in basket weaving. The roots of the tree have sterilizing qualities and are used as mouthwash. The hollowed trunks of palm trees may even be fashioned as a canoe for one or two!

In the culinary world, coconuts have it all, from the delightfully fatty coconut cream and milk products to the electrolyte studded nutritious water of the fruit. Though comparatively low in fat, the amounts contained are 90 percent saturated. This may sound a little scary, but scientists and nutritionists aside are feverishly researching data proving this saturated fat to be much healthier than that of butter or lard. Coconut milk comes from the fleshy meat of mature coconut, and has high oil content and some sugars.

To prepare fresh coconut milk, simply press fine grated flesh through a cloth or fine straining system. To obtain thinner and consequently less flavorful milk, the leftover grated coconut meat may be soaked in water and then passed through cloth again. Often times, a mixture of the first and second passing is what we buy canned in the market. Many times cans of coconut milk will be allowed to rest for such a time in storage on the shelves that the fat and the water of the mix will separate, and when opened some will believe this to be a bad sign. Its not! In fact, this is actually a good sign for us purists, as to obtain a indefinitely homogenized cream, unnatural stabilizers must be added… and sometimes are.

To have a nicely textured creamy product, the can may be gently shaken before opening. There are some applications however, when a richer and more custard — like consistency is desired, and in this case you want that can that has been sitting for a while… and you will carry it home very carefully to be sure to avoid remixing the fat and water. To speed this separation and hardening process of the fat, an unopened can should be placed in the refrigerator an hour before opening. If you wish to experiment with making your own milk, you may purchase grated coconut either canned or frozen in many Asian markets. Simply mix this pulp with water or even milk for a richer product, and allow it to soak warm. Then pass this through a cloth. Place the strained liquid in the refrigerator for a few hours and the thick cream will rise and solidify atop the coconut milk.

Coconut water is the fat-free liquid found in the center of young green coconuts. The best tasting water will come from green ones with some aged spots. Coconut water is popular in a slew of tropical drinks and cocktails, and may be found canned or bottled. The water has a high potassium and mineral content and helps to energize the body. The meat found in a young coconut is much softer and has less body than what is found in mature coconuts, and is referred to as coconut jelly. This is a natural gelatin, and may be used as a thickener in some food preparations.

I feel good after writing this, and can't wait to dive into some good coco in the kitchen! The following recipe is a simple and delicious gluten-free recipe that utilize coconut milk to the fullest! Happy cooking!

Red Coconut Curry with Chicken & Eggplant

  • 1 Tbsp garlic, minced
  • 1 yellow onion, diced
  • 2 Tbsp olive oil
  • 2 large chicken breasts
  • 1 Tbsp red curry paste (Thai Kitchens brand is gluten-free)
  • 1 (8oz) can coconut milk
  • 2 cups water
  • 1 cube chicken stock (Swanson's is gluten-free)
  • 2 cups eggplant
  • 8 fresh basil leaves, torn in pieces
  • Salt, to taste
  1. In a large saucepan, sauté olive oil, garlic and onion.
  2. Add in diced chicken breasts and cook for about 5 minutes.
  3. Stir in coconut milk and curry paste and allow to boil for 5 minutes.
  4. Add water, chicken stock, and basil.
  5. Bring back to a boil and cook until basil is tender (3-5 minutes).
  6. Add eggplant.
  7. Lower heat and simmer until eggplant is tender (about 10 minutes).
  8. Serve with basmati rice.

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GLUTEN-FREE COOKING SPREE
San Francisco Gluten-Free Cooking Spree a Scrumptious Success

By Vanessa Maltin
NFCA Director of Programming & Communications

On Saturday February 2, top San Francisco-area chefs, doctors and dietitians took over the West Bay Conference and cooked up some of the most delicious gluten-free meals of all time! Five teams raced against the clock to prepare decadent meals that highlighted the event's secret ingredient: gluten-free pasta.


Team 1 included Chef Clare O'Brien (Culinary Institute of America), Pauline Mysliwiec (Chief of Gastroenterology, Kaiser Permanente), Thelma Rodin (Santa Clara Medical Center), and Ashley Warner (San Francisco State University) Ashley Warner (San Francisco State University). This team presented UnGlu'd Mac'N'Cheese, which proved to be a favorite amongst kids in the room!

Team 2 was led by Pasta Pomodoro Chef Adriano Paganini and included Douglas Corley (Kaiser San Francisco), Rugmini Shah (California Department of Health), and Kaley Todd (UCSF). This team went against the norm by preparing a Risotto Salsicia. YUMMY!

Team 3's chef came to San Francisco all the way from Utah to participate in the event! Chef Paul Ruegner (Charlotte's Bakery), Mel Heyman (Chief of Pediatric Gastroenterology, UCSF), Morgan Camp (Integrative Medical Center), and Vikki Petersen (Health NOW Medical Center) joined together to cook Chicken Schnitzel Schloss Solitude, which was the tasty tongue twister of the night!

Team 4 rocked the salmon, cooking up a Poached Salmon with Pappardelle & Meyer Lemon Crème Fraiche. The dish had fried brussel sprout leaves, which were surprisingly delicious! Teammates included Alex March (Brick and Solstice), Antonio Qiros (Director of Pediatric Gastroenterology, Sutter Health), Anne Louise Santoro (Kaiser Permanente), and Yulia Rudman (San Francisco State University).

Team 5 prepared a delightful Prosciutto Wrapped Salmon with Herbed Polenta, Kasha, Dried Fig & Balsamic. This team included Glenn Hewitt (Compass Group, Microsoft), Jeffrey Aron (Dir. Inflammatory Bowel Diseases, CA Pacific Medical Center), Nancy Wei (Revolution Food Inc.), and Mickael Cardon (San Francisco State University).

CNN Newsroom Anchor and NFCA Spokeswoman Heidi Collins hosted the event with the National Foundation for Celiac Awareness. Heidi's personal struggle with managing celiac disease coupled with her love of delicious gluten-free food has helped move the Gluten-Free Cooking Spree forward nationwide!

The judges for the evening were Jacqueline Mallorca (Author, The Wheat-Free Cookbook), Elaine Taylor (Taylor Family Foundation), Gail Pyle (Stanford University Celiac Sprue Research Foundation) and two adorable kids with celiac, Riley Collins and Nathanial Corley.


Who were the big winners for the night?? For the first time in Cooking Spree history, there was a TIE! The judges couldn't decide between teams 4 and 5 (both made salmon), so the NFCA decided to let the teams share the honor of winning the San Francisco Gluten-Free Cooking Spree!

And, the tie actually worked out OK since Dr. Jeffrey Aron and Dr. Antonio Quiros are partners in gastroenterology at California Pacific Medical Center. The two will share the prize money from the cooking spree and will use it to partner with the NFCA to advance patient support programs at their new Center for Inflammatory Bowel Diseases.

About the Center for Inflammatory Bowel Diseases:
The Center for Inflammatory Bowel Diseases at California Pacific Medical Center is dedicated to focus on the fundamental interaction of the environment—as exemplified by the diverse microclimate and the ethnic composition of Northern California, and the innate and adaptive immune systems of the individual. This interaction occurs at the mucosal surface of the gastrointestinal tract and is at the heart of autoimmune diseases, of which celiac disease is the best-defined model. Investigating the interactions that also occur in Irritable Bowel Syndrome, Crohn's disease and ulcerative colitis will help us to develop novel and effective therapies for these diseases.

Dr. Aron says the Gluten-Free Cooking Spree was an "exciting and enjoyable evening, to continue to spread the awareness of celiac disease, and to help the work of the National Foundation for Celiac Awareness. We are anxious to continue our association as partners in these endeavors."

A huge thank you to all of the NFCA sponsors who make having these events possible and to all of the vendors who graciously donated food for the event! We couldn't have done it without you! An extra special thank you to Bob's Red Mill, Bio-Rad, Quest Diagnostics and Pamela's Products for going above and beyond to make the event a huge success.



And, a HUGE ROUND OF APPLAUSE for the San Francisco Celiac Community for making this one of the largest attended cooking sprees yet! And of course, thank you to the Cougars for providing fabulous entertainment!



Testimonials From the Winning Teams:
Anne Louise Santoro is a Registered Dietitian with the American Dietetic Association. She holds a degree in Literature from Harvard University and a degree in Nutrition from the University of Massachusetts at Amherst. Ms. Santoro brings to her nutrition practice over 15 years of experience in the food service industry. She has been a Food Service Manager, Cafe Manager, Pastry Chef, and Vegetarian Cook. She has an on-going private practice as The Food Coach...Your Personal Food Trainer where she provides a variety of nutrition services tailored to meet client's specific needs.

Anne says, "I had a lot of fun participating in the cooking spree! All the teams seemed to be having a blast cooking their meals with such dedication. I have to say I've never tasted so many delicious gluten-free foods, especially the desserts! I learned so much more about celiac disease by participating in this event. I knew there were classic symptoms, but I had no idea about the extent to which one can suffer from Celiac disease, how it can affect ones life in so many ways. Before the spree I wouldn't have even thought about cross-contamination, but now I see how celiac disease extends beyond the food itself to how it is prepared and under what circumstances."

Nancy Wei is a Registered Dietitian with experience in weight management, diabetes, nutrition during pregnancy and childhood obesity. Nancy's nutrition background ranges from improving health status through individual nutrition consultations to implementing large-scale research studies and public health programs. As current Operations Manager at Revolution Foods, Inc, a company specializing in providing fresh, home-style school lunches, Nancy is passionate about improving access to healthy food and the way children eat. Nancy completed her graduate training in Public Health Nutrition at University of California at Berkeley.

Nancy says, "The Gluten-Free Cooking Spree was a fun and rewarding experience. The moment Chef Glenn handed me the vegetable peeler and the bag of organic carrots, I knew he was going to work us hard! It was wonderful to talk to the guests about the delicious gluten-free food we had prepared and see their satisfied smiles of approval after their first bite of the winning dish. The best way to raise awareness and increase support for the celiac community is to bring together delicious food, medical knowledge, and nutritional expertise, which was exactly what this event did. I learned that you can be really creative with safe grains without compromising taste."

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EDUCATION & AWARENESS
Dietitians: A GREAT opportunity for Gluten-Free Education

By Nancy Baker
NFCA Director of Education

Living a gluten-free life can be complicated. Celiac disease is just one of the many health issues that dictates that a person should be on a gluten-free diet. Often, the newly diagnosed are given a rudimentary brochure of gluten-free products, which if prepared correctly can guide patients towards health. However, far too often, this basic list alone does not provide newly diagnosed patients with the tools necessary to prepare healthy and delicious gluten-free food.

The only treatment for celiac disease is a lifelong gluten-free diet. Without proper guidance, it is nearly impossible to manage the diet on a daily basis. This is where your dietitian comes in! Dietitians and nutritionists are able to provide newly diagnosed celiac patients with a wealth of information for managing special diets. Whether it is celiac disease, low-sugar or dairy-free diets, dietitians or nutritionists can offer advice for living a health lifestyle at work, home and on vacation!

So, how do dietitians learn the ins-and-outs of celiac disease to provide the most up-to-date information to their celiac patients? The NFCA has great news for dietitians! The GREAT program (Gluten-Free Resource Education Awareness Training) is available to all practicing dietitians, dietetic technicians and nutritionists and is a simple yet comprehensive way to become certified in gluten-free techniques.

GREAT is a collection of nutrition educational programs. GREAT Dietitians does not focus on the clinical manifestations of the disease, rather on the details of implementing the medical nutritional therapy of the gluten-free diet. It is designed to lead dietitians from a list of foods or ingredients to a skill set that ensures that a gluten-free product goes through a gluten-free process to be tasty and prevent cross-contamination.

GREAT is an ongoing pre-approved continuing education unit provider (found on the CDR website under the name Globally Gluten Free, LLC: www.cdrnet.org) for the Commission on Dietetic Registration of the American Dietetic Association. It has been aligned to meet both the ADA's Mission and Vision.

With more advanced screening and testing for celiac disease and gluten intolerance, more Americans will be finding themselves relying on a gluten-free diet. This is the future — more people living on a gluten free diet, each seeking education and resources.

Dietitians are one of the most valuable sources of food and nutrition services. With more people living a gluten-free life, it is essential that dietitians have practical information for the preparation of gluten-free foods. The detailed manual was originally prepared for food service providers and adjusted for the use of dietitians in both clinical and institutional settings. This is practical information for the implementation of a gluten-free diet, which addresses the top concerns of awareness, supplies, and cross contamination, which will each lead to allowing someone with celiac disease to eat well, thrive, and become healthy again.

SUMMARY:
GREAT Dietitians Basic Course (3CPEUs) provides the basics of gluten-free kitchen protocols. GREAT Dietitians Advanced Course (7) is a train the trainer program. Utilizing already trained dietitians we build a cooperative relationship with you as you help train others in the GREAT program.

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LIFESTYLE
I Heart Chocolate

By Abby Schwartz
NFCA Volunteer

Valentine's Day is the perfect time to embrace one of the most joyful delights of a celiac's life... chocolate. If, like me, you are the parent of a child who cannot eat gluten, you are familiar with the challenges that pop up at different holidays and occasions in your child's life. Just sending your child to school, you will encounter pizza parties, cupcakes that are sent for birthday celebrations, soft pretzel sales, and more. Valentine's Day, however, is one of the easier holidays for your child to participate in at school.

How Do I Love Brownies? Let Me Count the Ways...
When my daughter comes home from school with a sign-up sheet for an upcoming classroom party, I always volunteer to send in brownies. Let's be honest here; with kids, it's all about slipping in a gluten-free treat under the radar. Kids not only want to eat what their friends are eating, they want to fit in. Your child may happily eat gluten-free pizza or bread at home, but if you are sending in a food that is going to be shared by her peers, you had better make sure it passes for "real" food. Because the first whiff another kid gets of a food being different, you can bet it is going to be pointed out. Loudly.

I'll give you a little side story that relates. My friend James once told me how his parents used to bake their own bread when he was growing up (regular bread—this was not a celiac story). Every day at school, James unpacked his lunch and ate his sandwich made on homemade bread. The adult me who heard this was impressed at the effort his parents made and thought, "Wow, they were really ahead of their time." James hated it. He envied the other kids their uniformly shaped, squishy Wonder Bread, and felt like the class dork with his misshapen, home-baked brown bread. Kids want to fit in.

Unlike gluten-free pizza or bread, GF brownies easily pass for "regular" brownies. There are several of terrific; easy-to-make mixes out there including ones from Gluten-Free Pantry, Miss Roben's, Bob's Red Mill, Pamela's and more. Throw in some mini chocolate chips or butterscotch before baking and no kid out there will be able to tell the difference.

Another easy treat to contribute on Valentine's Day is a bag of store-bought candy. Mainstream candy. Plain M&Ms, Hershey bars with or without almonds, Almond Joy and Mounds bars, Dove chocolates in milk or dark chocolate, Three Musketeers bars, and more. We avoid sending in anything with peanuts, in case of another child's allergy (see how being a celiac parent enlightens your thinking?).

What about candy hearts, boxes of mystery truffles and other ubiquitous Valentine's Day staples, you ask? Unless you know who manufactures those items and you are able to find out from the company that the food in question is gluten-free, assume it is not. Or, as I like to say: when in doubt, throw it out. Even if the ingredients are safe, candy can be processed on conveyor belts that are dusted with flour. Don't feel too badly about ruling out candy like this, however. There is an opportunity to broaden your child's horizons with a whole world of chocolates that are, in my opinion, light years better than the candy we grew up with.

Chocolate Grows Up

If you have turned on the news or picked up a magazine in the last five years, you have heard the news: chocolate is healthy. Specifically, dark chocolate that is made with a high percentage of cocoa is considered to have health benefits. Dark chocolate contains heart-healthy flavenoids that can lower blood pressure and cholesterol, and antioxidants that fight free radicals. Chocolate, of course, is high in calories and should not be eaten in large quantities, but fortunately, good, dark chocolate is so rich in flavor, a small square is surprisingly satisfying. Take a trip to a higher-end supermarket or specialty food store and try something new. You will find chocolates that are made from organic, whole ingredients, by fair-trade companies, which are—9 times out of 10—gluten-free (watch out for any that contain crisped rice, which is often made with barley malt).

Teaching your child the joys of grown-up chocolate is a wonderful way to introduce him or her to a world of flavor and sophisticated tastes, and may instill some healthy habits at a young age. Chocolate is an undeniable pleasure that, happily, our celiac children do not have to be denied.

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LIFESTYLE
Buckwheat: The Nutritional Truth of a Fruit?

By Christina Gentile
NFCA Volunteer

Buckwheat?? Sounds like an automatic NO for anyone on a gluten-free diet. Wrong! Despite its deceiving name, buckwheat is actually gluten-free and can be safely incorporated into a celiac's lifestyle.

Technically, buckwheat is a fruit and is related to the rhubarb family. It contains many nutrients, especially protein, and it has a nutty, earthy flavor. What makes buckwheat special is that it has twice the amount of Calcium as other grains and it is an excellent source of Magnesium providing 86 mg per cup. Additionally, it contains eight essential amino acids. Calcium—along with Vitamin D, Phosphorus, and Magnesium—has an important role in bone mineralization and strength. The benefits of having high amounts of Calcium in buckwheat products will help ensure adequacy of the nutrient and reduce the risk for Osteoporosis. Magnesium aids in the body's absorption of calcium and plays a key role in the strength and formation of bones and teeth. Essential amino acids are not made in the body and are required by the diet, so it is advantageous to include buckwheat as a part of one's diet.

In addition, buckwheat is a good source of fiber. It contains 4.5 grams of fiber in a 1-cup serving and is high in insoluble fiber. Insoluble fiber contains many health benefits such as preventing diverticulosis and colon cancer, relieving constipation, and aiding weight management. Because of the many nutritional qualities, diets that contain buckwheat have been associated with low cholesterol, low blood pressure, and a healthy blood flow, which protects against heart disease. It also contains a rich supply of flavonoids that are known for their antioxidant activity to help prevent disease.

Buckwheat can easily be used in any recipe. It is most commonly ground into a dark, gritty flour and can be used to make a variety of products such as pancakes, cookies, and even noodles. You can substitute buckwheat for other types of gluten-free flours such as rice, tapioca, or sorghum.

When I use buckwheat for baking, I like to use it with a combination of other gluten-free flours to give my products the right consistency and texture. For example, if I need 2 cups of gluten-free flour, I would use 3/4-cup buckwheat and 1 ¼ cup sorghum flour. If you use buckwheat by itself, be careful because the taste of your product will be altered. This is because buckwheat has a strong nutty flavor.

When shopping for buckwheat, you will come across a light and dark variety. Always opt for the darker variety because it is more nutritious than the light. When choosing brands, make sure the label says that it is made in a gluten-free factory to avoid any chances of cross-contamination. Some gluten-free brands include Shiloh Farms, Arrowhead Mills, or Hodgson Mill (Unfortunately, Bob's Red Mill Organic Buckwheat is not available gluten free).

Buckwheat flour should be stored in an airtight container in the refrigerator.

Here are several recipes that include buckwheat (along with other gluten-free flours) to make great food items with this beneficial flour. Remember to always completely measure out the flour and watch the consistency of the dough. Enjoy the!

Buttermilk Buckwheat Pancakes

  • 1 cup Buckwheat flour
  • 1 1/2 cups GF Flour Mix (Bob's Red Mill GF All Purpose Baking Flour)
  • 1/4 cup Sugar
  • 2-1/2 tsp. Baking Soda
  • 1/4 tsp. Salt
  • 1 3/4 cup Buttermilk
  • 1 1/2 cup Milk
  • 1 TBSP butter, melted
  • 2 tsp. Vanilla Extract
  • 1 egg
  1. Combine all dry ingredients in a large mixing bowl.
  2. Combine all wet ingredients in a separate bowl. Add dry ingredients and stir until smooth (you may need to add more milk to the batter depending on how thick or thin you enjoy your pancakes).
  3. Spoon batter onto a hot, nonstick skillet. Flip the pancakes when the edges appear brown and bubbles start to appear on the surface. Cook for another minute

Options: Fold 3/4 cup fresh berries, mini-chocolate chips, or chopped nuts into the batter for a delicious treat.

Chocolate Lover's Fudge Cookie

  • 2 cups Semi-Sweet Chocolate Chips
  • 4 oz Bittersweet Chocolate, chopped
  • 2 oz Unsweetened Chocolate, chopped
  • 1 cup Walnuts
  • 2 TBSP Salted Butter
  • 2 Eggs
  • 2/3 cup Sugar
  • 1/3 cup Buckwheat Flour
  • 2 tsp. Vanilla Extract
  • 1/4 tsp. Baking Powder
  1. Preheat oven to 350 degrees. Grease a cookie sheet with unsalted butter.
  2. In a medium saucepan, melt 1 cup of the semi-sweet chocolate chips, unsweetened chocolate, and the butter.
  3. Remove from heat; add the eggs, sugar, buckwheat flour, vanilla, and baking powder. Beat until combined, scraping sides of the pan. Stir in chopped bittersweet chocolate, remaining semi-sweet chocolate chips, and walnuts.
  4. Drop teaspoons of dough onto the cookie sheet 2 inches apart.
  5. Bake in the oven for 8-10 minutes or until the surface of the cookie looks slightly cracked. Transfer to a wire rack and let cool.

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RESTAURANT RANTS & RAVES
Legal Seafood: A Palace of Fine Food

By Stefanie Kleinman
NFCA Volunteer & Awareness Coordinator

When people think of restaurants that could pose a potential problem for celiac patients, they often think of Italian or Asian restaurants — places where glutinous products are used copiously and the risk of cross-contamination runs rampant. However, a seafood restaurant is typically a much safer option and will generally have more variety to choose from...or at least the chef can grill a piece of fish! Yet, no matter what restaurant you visit or how educated they claim to be on gluten-free cooking, there is always a risk and fear of cross-contamination, My recent visit to Legal Sea Foods put the majority of those concerns to rest and gave me the courage to take anyone with celiac to dinner at this fine establishment.

Legal Sea Foods has developed a "Celiac Menu," which they have at every restaurant across the country. The menus vary from location to location so make sure you check with the restaurant in your town to find out what gluten-free options they have. The location I dined at, the 7th Street Gallery Place restaurant in Washington, DC, had a fairly extensive menu with many options that were similar to those on the regular menu. They even made most of the baked items with gluten-free breadcrumbs! As I was with a large group of celiac patients, they found it a real treat.

Now for the tasting part of this review: I ordered the Lite Clam Chowder, an appetizer Crab Dip and the Wood-Grilled Swordfish as my meal. While the chowder tasted great, it was not the typical chowder. It was not creamy at all, more like chicken soup with clams. When I ordered the chowder, I was hoping for the thick and creamy chowder that I used to eat in Boston. However, it did taste great….it just wasn't quite was I thought I was getting.

The crab dip was fantastic — it was served with fish chips and was creamy and delicious. Everyone at the table was shocked at how tasty the fish chips were! Having lived in Boston for seven years, I had eaten these many times before, so I was thrilled that 16 celiacs found out that they could eat them too!

The Swordfish was delicious. It was wood grilled and served with sweet potatoes and brown rice. Yummy!

Although I personally was way too full to order dessert, there were a few gluten-free options, including a specialty dessert of the day that changes regularly. Some of the folks in our group ordered a fresh mango sorbet that looked amazing!

Despite the delicious food, the most satisfying part of the evening was the service and the awareness of celiac within the restaurant. Our server was very conscientious of everything and informed us at the beginning of the evening that they would be taken extra time in the kitchen to make sure everything was cooked correctly. No bread was brought to the table and the one mistake that was made — a sealed package of crackers was put on the plate beside my bowl of soup — was immediately corrected as the manager swooped in to apologize and retrieve said crackers. All in all, I had a wonderful dinner and would recommend Legal Sea Foods to anyone with celiac look for a pleasant and safe place to dine out.

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AWARENESS ADVOCATES OF THE MONTH

By Nancy Ginter
NFCA Director of Operations

JoAnn Mitchell: A Bay Area Advocate for Celiac Disease

JoAnn has put the "active" in activist! This bundle of energy works vigorously to make the world a better place for those with celiac disease.

This month, the National Foundation for Celiac Awareness (NFCA) is pleased to honor JoAnn Mitchell as the Awareness Advocate of the Month. Since learning that she has celiac disease four years ago, JoAnn has been a lively member of the celiac community participating in the activities of a number of groups in her area.

NFCA is most grateful that JoAnn found time to work with the NFCA Team as we prepared for the Gluten-Free Cooking Spree held in San Francisco on February 2, 2008. Over 350 people enjoyed fabulous gluten-free food and an evening of fun without having to worry about what they were eating. Thanks to JoAnn for contacting local vendors, gaining ads for the program book, and selling raffle tickets at the event. JoAnn also made sure that kids with celiac disease knew about the event and were able to join the fun. JoAnn's ten year old daughter, Autumn, also has celiac disease.

JoAnn is a very active member of two Celiac Support Groups in the Sacramento Area, both affiliated with the Celiac Sprue Association. Sprue & You is a large and busy group serving a four-county area just 90 miles from San Francisco. She also works with two Cel-Kids groups, including the Cel-Kids' Sacramento Chapter.

This year, JoAnn has started an exciting new venture called Mommy and Me. JoAnn and her daughter Autumn have begun to give cooking classes focused on preparing gluten-free food. If you are in the Sacrament/Davis area, look for Mommy and Me classes at the Whole Foods Market store in Sacramento and at the Davis Food Co-Op. JoAnn reports that Autumn is a good eater and loves to cook!


This year brings another first for JoAnn. She has begun working with Camp Arroyo, the celiac kid camp sponsored by the Taylor Family Foundation in Livermore, CA. Once again, JoAnn is using her very strong powers of persuasion to get vendors to supply gluten-free food for this marvelous camp that is available at a minimal cost to children with celiac disease. A true innovator, JoAnn has inaugurated a Vendor's Fair for the last day of camp so that children and their parents can taste-test gluten-free items and make purchases to take home.

JoAnn came to a diagnosis of celiac disease after years of suffering through health issues of all kinds. Like many celiacs, JoAnn had a range of problems from migraines and blurred vision to intestinal issues and surgeries for gallbladder problems plus exploratory surgeries to try to determine the cause of her difficulties.

At long last, a dietitian with whom JoAnn was consulting diagnosed JoAnn's problems correctly as celiac disease. She recommended getting a blood test. The test was positive, as suspected. Twenty-four hours after starting a gluten-free diet, JoAnn was free of the symptoms that had plagued her. Her vision returned to normal almost immediately.

Two years later, JoAnn's daughter was diagnosed with celiac disease. Autumn has adjusted well to the gluten-free lifestyle and has embraced making gluten-free meals with her Mom. The Mitchell household is now entirely gluten-free.

We all have dreams and goals concerning the future of celiac disease in America. For JoAnn, the most important thing is gaining universal support from the medical community for those with celiac disease. JoAnn believes that it should be a requirement that all healthcare professionals learn about celiac disease both in their medical training and on an annual basis. Since new findings emerge regularly about celiac disease and related illnesses, JoAnn proposes that celiac should be a standard topic that earns continuing education credit (CME).

Go JoAnn!

Again, huge thanks to JoAnn for her help at the NFCA Gluten-Free Cooking Spree. JoAnn, you motivate all of us to get active!

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Hot Products

Show Ya Care
Thanks to Show Ya Care, an online care package company, now you can send your long-distance cuddlebugs a little gluten-free love! Their newly developed gluten-free package includes goodies such as brownie mix, breakfast bars and fruit strips. What a cute way to show your loved one at college or overseas you care! For more information about their company, or to order your package now please visit their website: www.showyacare.com

Betsy & Claude Baking Co.
Betsy & Claude Baking Co. is making it easy to indulge in your love affair with cookies. Their gluten-free, nut-free, dairy-free, egg-free and soy-free cookies also happen to be extremely delicious. Betsy, and her childhood imaginary friend Claude, believe in dessert for everyone. With their chocolate chip, gingersnap, peppermint chocolate chip and NOatmeal raisin cookies they've certainly found some winners! You can also custom order any cookie concoction you can dream up. What's not to love about that? Order online: www.betsyandclaude.com

Digestive Health SmartBrief
Because nothing says I love you like the knowledge necessary for a good bill of health, sign your loved ones (and yourself!) up for the Digestive Health SmartBrief. This free weekly news service provided by the American College of Gastroenterology and will email you a summary of the most recent and relevant stories in digestive health news. If your doctor is not currently one of the 900 AGS members taking part in the program, simply select "My doctor is not participating yet" to sign up. Register today: www.smartbrief.com/dhsb/

TastesLikeRealFood.com
Baking mixes are arriving stateside with love from Norway! Toro brand white bread, whole meal bread, waffle and pancake, and sponge cake mixes are now all available online. These baking mixes do contain trace amounts of gluten (20 parts per million) but have been deemed harmless by Codex Alimentarius, the food safety standard of the European Union. Like celiacs in Europe have been safely doing for the past 30 years, let Toro's baking mixes re-ignite your passion for carbs! Currently available online: www.tasteslikerealfood.com

Sweetheart Conversation Heart
Finally, it just wouldn't be Valentine's Day without them… so the last hot product this month is Sweetheart Conversation Hearts. According to Necco's website these little icons are gluten-free. So now you can say "BE MINE" with peace of mind. You can pick up these sweet little nothings at most local grocery and drug stores and more information about the brand can be found on their website: www.necco.com

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Celiac In The News

Enzyme May Provide Treatment for Gluten Intolerance
An enzyme has been recently identified that is able to degrade gluten in a laboratory simulation of the gastrointestinal tract. Researchers in the Netherlands are now proposing clinical trials.

Who Picks Up the Gluten-Free Tab?
Celiac disease patients in New York go head-to-head with their insurance companies over food reimbursement.

Alba Therapeutics Appoints Wendy Perrow as its Vice-President, Marketing and Alliance Management
Alba Therapeutics, currently in clinical trials for AT-1001, a drug that is targeted towards treating celiac disease, makes some important changes to its marketing strategy.

Administration Request for FDA Fails to Meet US/Global Needs
The Alliance For a Stronger FDA says that the FDA 2009 budget continues to provide inadequate resources for consumer protection. The Alliance has more than 170 members, including NFCA.

Quebec Researchers to Study Celiac Disease
Researchers in Canada have started studying the genetic make-up of celiac disease patients and their families in an effort to improve early diagnosis. They will also look at other methods of diagnosis and prevention strategies.

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Celiac Fun Fact

For a gluten-free sweet treat, many companies provide a wide variety of gluten-free chocolates, such as Chocolate Emporium, www.choclat.com/GFCF/gfcf.php. For even more fun, use gluten-free cake mixes to create a homemade masterpiece. Try this recipe for mini cupcakes with strawberry mousse on the side!

Mini cupcakes

Ingredients:

  • 1 single cake package or 1/2 cup Wise Choice Cake-ability Baking Aid
  • 2 cups almond flour
  • Sweetener equivalent to 1/2 cup sugar
  • Pinch of salt
  • 1/2 cup of water
  • 1/2 cup sour cream
  • 3 large eggs, beaten
  • 3 T vegetable oil
  • 1 tsp vanilla extract
  • 1/2 tsp almond extract

Directions:

  1. Pre-heat oven to 250F
  2. Using non-stick coating, spray muffin cups.
  3. Combine Wise Choice Cake-ability Baking Ad, almond flour, sweetener and salt. Using a whisk, stir to get rid of any lumps or pass mixture through a medium sieve.
  4. In a separate bowl, combine liquid ingredients.
  5. Add egg mixture to dry ingredients and stir until just combined.
  6. Spoon into muffin tins, filling 3/4 full. Bake for about 15 minutes until tops spring back when lightly pressed, or until a skewer comes out clean.
  7. Let sit in pans for 2 minutes, then turn out onto racks to cool

Makes about 3 dozen. Variation: For chocolate cakes: add 1/4 cup cocoa powder to dry ingredients. It's a good idea to sift it first.

Southern Strawberry Mousse

Ingredients:

  • 1 qt strawberries, washed and hulled
  • 3/4 cup sugar
  • 1 T lemon juice
  • 1/8 tsp salt
  • 1 cup heavy cream, whipped until stiff

Directions:

  1. Crush strawberries and add sugar, lemon and salt.
  2. Fold mashed berries into whipped cream.
  3. Pour into a refrigerator tray and freeze about 2 1/2 hours, stirring once during freezing.

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