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  www.CeliacCentral.org Editorial Comments: Vanessa Maltin Editor@CeliacCentral.org Volunteer Inquiries: volunteer@CeliacCentral.org To submit articles: Editor@celiaccentral.org CeliacCentralVolume 1 Issue 1November 2006 CeliacCentral Printable PDF  NOTE FROM ALICE BAST NFCA Executive Director Welcome to CeliacCentral, the new monthly e-mail newsletter for the National Foundation for Celiac Awareness (NFCA). As executive director for the foundation, it brings me great pleasure to launch this new publication to further our mission of raising celiac disease awareness and getting the three million Americans with celiac disease properly diagnosed. Through in-depth articles, we hope to thoroughly educate celiacs around the country about maintaining a gluten-free lifestyle as well as create a strong network of celiac awareness advocates. We hope that you’ll join our National Awareness Campaign and get involved in NFCA’s other exciting events such as the Gluten-Free Cooking Spree and Appetite for Awareness. Together, we can raise celiac awareness in a fun and entertaining way. My first challenge to you is to join our Tell Five Friends campaign and tell five of your friends about celiac. Whether it be your best friend or someone you meet on a train, educate them about celiac disease because they might have it and not know. I spoke with a young celiac just last week who has helped 11 people diagnosed just by talking about celiac! So, get out and tell your story to help people get diagnosed! I sincerely hope that you enjoy reading CeliacCentral!! Happy reading! Alice ANNOUNCEMENTS XII International Celiac Disease Symposium 2006 November 9-11, 2006 Hilton New York City Celiac disease will take center stage in New York City as the Celiac Disease Center at Columbia University hosts the XII International Celiac Disease Symposium 2006. The symposium is expected to attract healthcare industry leaders, clinicians, nutritionists, diagnostic and pharmaceutical executives, scientists, policy makers, patients and journalists and will touch on every aspect of adult and pediatric celiac disease – diagnosis, treatment, science and public policy. This symposium will bring together world leaders who will work to determine the nature of celiac disease and its impact on patients around the globe. As an official sponsor of the International Celiac Disease Symposium, the National Foundation for Celiac Awareness will work to promote its national awareness campaign to ‘restore health and reclaim lives. For more information, please visit: http://www.celiacdiseasecenter.columbia.edu/symposium/ BEYOND RICE CAKES By Vanessa Maltin Welcome to the first edition of Beyond Rice Cakes, a monthly lifestyle column that in a humorous way will explore life with celiac disease and hopefully motivate you to live a happy and healthy gluten-free life. Before we get started, let me introduce myself. My name is Vanessa Maltin and I am the director of outreach and programming at the National Foundation for Celiac Awareness. I was diagnosed with celiac disease when I was 21 years old after interviewing Alice Bast for a story I was writing for the Palm Beach Post newspaper. My editor assigned me to cover the NIH Consensus Conference and I was shocked to learn that migraine headaches were a symptom of celiac disease. With my article in hand, I went straight to my doctor to get tested. Sure enough, I was positive. I was so thankful for being diagnosed that I had to get involved with the foundation. The first big project I worked on with NFCA was writing Beyond Rice Cakes: A Young Person’s Guide to Cooking, Eating & Living Gluten-Free. The book offers hilarious first-person tales of the trials and tribulations associated with celiac disease including the often embarrassing side effects and surviving college without beer. More importantly, it guides newly diagnosed celiacs—especially young celiacs—through managing a healthy gluten-free diet that is easy and fun to maintain. The book contains more than 150 easy-to-make recipes including snacks and finger foods, soups and salads, main dishes and desserts. The pages are filled with advice from experts for maintaining a gluten-free diet and humorous stories that illustrate the realities of life with celiac disease. Since the book was released in September, we’ve had an overwhelmingly positive response and decided to extend the messages from the book into this monthly column. That said, I call on you, our readers and members of the celiac community, to submit questions and topics for Beyond Rice Cakes to explore. Whether it is an interest in gluten-free beer or a question about the best type of gluten-free flour to use for chocolate chip cookies, send your comments to editor@celiaccentral.org. Every month, I’ll personally sort through all of your submissions and choose a topic to write about that will help everyone with celiac improve their gluten-free lifestyle. So send in your submissions to editor@celiaccentral.org and make sure to read next month’s newsletter to see if your topic was selected! Sincerely, Vanessa Maltin RECIPES OF THE MONTH Spinach Artichoke Dip 1 (10 oz) package frozen chopped spinach 2 (13 3/4 oz) cans artichoke hearts 1/2 cup mayonnaise 1/2 cup sour cream 1 cup freshly grated parmesan cheese 1 cup grated Pepper Jack cheese Dash of hot sauce to taste Salsa or pico de gallo for garnish 1) Preheat the oven to 350 degrees. 2) Grease a casserole dish with nonstick spray. 3) Heat the spinach in a microwave oven on high for 5 minutes and squeeze dry. 4) Drain the artichoke hearts and coarsely chop in a food processor. If you do not have access to a food processor, chop artichoke hearts into small 1⁄2-inch pieces. 5) Combine all of the ingredients (including hot sauce) except the Jack cheese in a large bowl. Stir well. 6) Scrape into the prepared casserole dish and sprinkle the Jack cheese on top. 7) Bake for 30 minutes. Serve immediately with tortilla chips, carrots or celery. 8) Garnish with salsa or pico de gallo. Mango Salsa 1 (16 oz) can black beans 1 (16 oz) can corn or 2 ears of fresh corn 1 chopped mango 1⁄2 chopped red pepper 1/3 cup chopped red onion 1/3 cup chopped cilantro 1⁄4 cup lime juice 1) Mix all the ingredients together. 2) Drain excess liquid. 3) Refrigerate for 1 hour before serving. 4) Serve as side dish with gluten-free crackers, rice cakes or as a sauce for fish, chicken etc. Eggplant Pizza 1 large eggplant 1 cup of tomato pasta sauce 1 cup of shredded mozzarella cheese Salt, to taste Pepper, to taste Oregano, to taste Garlic powder, to taste 1) Preheat oven to 350 degrees. 2) Slice the eggplant lengthwise into 1⁄2-inch thick slices and lay on a greased backing tray. 3) Cover each slice to the edges with sauce. 4) Add seasoning to taste. 5) Top with mozzarella. 6) Cook for 10 to 15 minutes or until cheese browns. **OPTIONAL: Add more vegetables (onions, peppers, mushrooms, fresh tomatoes, roasted red peppers) to vary the taste. To ensure that the veggies stick to the pizza, add a thin layer of cheese on top to secure them. Tomato Mozzarella Skewers 1-2 cartons cherry/grape tomatoes 1 1⁄2 cups fresh basil 1-2 pkg of fresh mozzarella balls 2-3 Tablespoon balsamic vinegar 1-2 cloves of chopped garlic 1 pkg of toothpicks 1) Wash tomatoes and basil and pat dry. 2) Break basil leaves off stems and set aside. 3) Take toothpicks and begin layering mozzarella, basil and tomato on each toothpick. 4) Repeat layering until you have filled appetizer tray and or have a suitable amount for your group. 5) Lastly, drizzle balsamic mixture over the mini skewers and serve. Do you want your recipes considered for next month's CeliacCentral? Email your best gluten-free recipes to editor@celiaccentral.org. YOUNG ADVOCATES FOR AWARENESS Are you between the ages of 18 and 30 and interested in helping to raise celiac disease awareness among your peers? The Young Advocates for Awareness (YAFA) is a sub-group of the National Foundation for Celiac Awareness and is working to help diagnose the three million Americans with celiac disease who remain undiagnosed and suffer needlessly. Through outreach to university health centers, sporting and social events, YAFA hopes to educate the public and medical communities about celiac disease and encourage routine testing for the condition. The first YAFA chapter was started in Washington, D.C. with a group of eight young people ranging in age from 22 to 29. They’re hard at work planning gluten-free happy hours and a Gluten-Free Cooking Spree that is sure to raise awareness among thousands of students attending school in the nation’s capital. If you’d like to get involved, please contact Vanessa Maltin, NFCA’s director of outreach and programming at vanessa@celiaccentral.org. And check out the YAFA website next month for a calendar of fun-filled events!! NIDDK LAUNCHES CELIAC DISEASE AWARENESS CAMPAIGN The National Institute of Diabetes & Digestive & Kidney Diseases (NIDDK) recently launched a celiac disease awareness campaign aimed at diagnosing the nearly three million Americans that continue to suffer needlessly. As part of the campaign, the NIDDK will conduct and support research on celiac disease that will investigate the genetic and environmental causes of the condition. Furthermore, researchers will study the substances in gluten that are thought to be responsible for impairing immune system function associated with celiac disease. Researchers will also work to develop educational materials aimed at standardizing medical training in hopes of raising celiac awareness among medical providers. The National Foundation for Celiac Awareness applauds the efforts of the NIDDK and hopes to soon begin work on a joint awareness campaign to bolster the ranks of diagnosed celiac patients. For more information about the NIDDK program, please visit: http://digestive.niddk.nih.gov/ddiseases/pubs/celiac/index.htm APPETITE FOR AWARENESS A HUGE SUCCESS True or False: Once you test positive for celiac disease, you do not need follow-up care from a physician?? Answer: FALSE On Friday October 13, the National Foundation for Celiac Awareness held its third annual Appetite for Awareness event, raising more than $170,000 for celiac disease awareness efforts. This year, MythBusters took center stage and helped the more than 260 people that attended the event turn common myths about celiac into hard facts. Also in attendance were a variety of superheroes, all of whom shared a little bit of celiac wisdom. Bruce Gordon of Fox 29News hosted the event and helped the Foundation honor Dr. Anthony J. DiMarino Jr. for being a true Advocate for Awareness for celiac disease. Dr. DiMarino Jr. is the William Rorer Professor of Medicine and the Director of the Division of Gastroenterology & Hepatology at Thomas Jefferson University Hospital. Food and beverages were generously provided by Bliss Restaurant, Chestnut Hill Cheese Shop, Ramapo Valley Brewery and Whole Foods Market Gluten-Free Bakehouse. Event planning was provided by Culinary Concepts. Thank you to everyone who attended and supported Appetite for Awareness. What a fabulous evening! To see pictures from the event click here. To get involved with planning an Appetite for Awareness benefit event in your area, please contact info@CeliacCentral.org. AWARENESS ADVOCATE OF THE MONTH Are you working to raise celiac disease awareness in your area? Do you know someone who is? Tell us the story! Send stories of awareness efforts to editor@celiaccentral.org and you could be featured in next month’s CeliacCentral as the Awareness Advocate of the Month. CLINICAL OUTLOOK Center for Celiac Research University of Maryland Baltimore, Maryland http://celiaccenter.org/ The Center continues to work with Alba Therapeutics to accelerate our goal to find an alternative treatment/cure for celiac disease. Alba has already completed a clinical trial in celiac patients with preliminary data that were so promising that the FDA approved the next Phase II multi-center trial. Dr. Robert Anderson from Australia has joined the Center for Celiac Research as a visiting faculty member. Dr. Anderson's research focus is a vaccine for celiac disease. In addition, Alessio Fasano, MD was named the University of Maryland Entrepreneur of the Year. Below is a press release from the University. ENTREPRENEUR OF THE YEAR—Alessio Fasano, MD “Discovery is to see what everyone else has seen and to think what no one else has thought.” Those words from 1937 Nobel Prize winner Albert Szent Györgyi enjoy a prominent place in the office of Alessio Fasano, the director of the Mucosal Biology Research Center (MBRC) at the School of Medicine and founder of the Center for Celiac Research, which is housed in the MBRC in Health Sciences Facility II. That sense of discovery, plus rigorous discipline, a little serendipity, and a large dose of luck, is what Fasano—a pediatric gastroenterologist and professor of pediatrics, medicine, and physiology at the School of Medicine—credits with guiding him to some remarkable discoveries and accomplishments. Fasano moved to Baltimore from Naples, Italy, in 1993 with a scholarship to the School of Medicine’s Center for Vaccine Development. In 2000, Fasano and his colleagues discovered zonulin, a protein that regulates the permeability of the intestine. In 2004, Fasano and Blake Paterson, MD, founded Alba Therapeutics Corporation, now headquartered at the UMB BioPark, to transfer the zonulin technology from the lab’s bench top to the patient’s bedside. Fasano resigned as interim chief scientific officer to return to academics full-time. He is now chair of the company’s scientific advisory board. Technology developments from Fasano’s laboratory have resulted in more than 150 patents now held by Alba Therapeutics. The company, named the Maryland Incubator Company of the Year in 2006, has completed clinical and human trials of AT-1001, its lead compound. AT-1001 is targeted toward the treatment of celiac disease and other autoimmune illnesses. CELIAC IN THE NEWS Celiac cookbook: graduate's recipes help cope with digestion disease On October 2, the George Washington University Hatchet featured an article on celiac disease and Beyond Rice Cakes. Celiac disease more common than most realize On October 22, the Houston Chronicle featured a story about celiac disease in their Lifestyle section. U-Wire Features Celiac Disease On September 28, U-Wire featured an article on celiac disease and Beyond Rice Cakes. Canada's National Post features celiac disease On August 22, the National Post featured an article about celiac disease discussing the NIH's awareness campaign. CELIAC FUN FACT OF THE MONTH Are you hosting a Thanksgiving party this month? Most staples of a Thanksgiving meal are naturally gluten-free: turkey, cranberry sauce, mashed potatoes, sweet potatoes, green beans, and onions. Even stuffing can be made gluten-free. Check out NFCA's listing of Thanksgiving recipes for more information. Click here. SUPPORT GROUP EVENTS California: Orange County CSA Chapter #14 Our annual business meeting will take place on Saturday, November 18th, 2006, at 12 noon. Location is Fountain Valley Hospital Medical Office Building. The hospital address is 17100 Euclid, Fountain Valley. The Medical Office Building is right next to it and faces Warner. We will meet in rooms 112-114. There will be a pot-luck of gluten-free foods, after which we will have our short annual business meeting with elections. Then Dr. Richard Mathis, a pediatric gastroenterologist, will speak to us. Information: Barbara Strudwick, phone 714-523-2599. Children's Celiac Group meets on the 3rd Saturday of the odd numbered months, (i.e. Jan., Mar., May, etc.) We meet at 5pm at our home in Moreno Valley, CA. Our address is 10034 Snipe Circle Moreno Valley, CA 92557. My phone number is 951 242-8448. Our next meeting will be Saturday, November 18th. San Gabriel Valley,Southern California, Pasadena area People come from as far away as Burbank, San Dimas and Whittier. November 11, 2006 10:00 to 12:00 All Saints Church, 132 N. Euclid Ave, Pasadena Bring a GF food to share. Enclude 20 to 30 copies of the recipe or the box it came from. For directions or more info contact: Tenny Custer 626-287-5436 Tenaya3@earthlink.net Indiana: Annual Holiday Dinner: Sunday November 12 at 1:30 at the Kathryn Weil center in Lafayette, IN. It will be from soup to pie! Families are welcome, but we need an RSVP please. For more information about the dinner or our group you may e-mail Nancy at nancygrandma3@aol.com or call 765-497-0665. Our other meetings are held the second Sunday of February, April, June, September and November. Ohio: Raising Our Celiac Kids (R.O.C.K)-Support Group in Akron Area Monthly Meetings of Akron Local Chapter Second Sunday each month 2:00 - 4:00 p.m. With the exception of May and November Held at Sunrise Assisted Living, 101 North Cleveland Massillon Road, Montrose. Contact Therese for more information at tsemonin1@neo.rr.com or 330-608-8436 Texas: Saturday, November 4, 9AM 101 Class; 10AM Support Group Meeting, Richland Hills Church of Christ, 6300 NE Loop 820, North Richland Hills: We will welcome Cynthia Kupper, the National Director of GIG of N.A., based in Washington State. We will also do a mini version of the "Holiday Baking" themed-meeting that we do every November with members sharing their favorite holiday recipes. Bring a dish and copies of the recipes for everyone. Saturday, December 2, 9AM 101 Class; 10AM Support Group Meeting, Richland Hills Church of Christ, 6300 NE Loop 820, North Richland Hills: Annalise Roberts, sister to Claudia Pillow and cookbook author will be our December speaker. Annalise is the author of “Gluten-Free Baking Classics''. We will also have a “Holiday Dessert Brunch and GF Cookie Exchange”. We ask that each of you bring your favorite holiday dessert and 2 dozen home baked cookies with recipes to share with others. Friday, December 8, 7PM, NTGIG’s Christmas Party: Anita Royse has graciously agreed to host this year’s Christmas party at her home. Anita’s address is 3621 Welwyn Way, Bedford, TX 76021. We ask that you bring a side dish or dessert. RSVP as soon as possible to Anita Royse. Adults only, please. |
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