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Ed Snider's Story

Taken from WPVI local news
http://abclocal.go.com/wpvi/news/print_112304-sr-edsniderbattle.html

Flyers Chairman Ed Snider breaks his silence on his battle with a mysterious disease.

It is called "the Great Masquerader" a disease that can mimic many others. Now, a famous Philadelphian is talking about his struggle with this illness.

We're talking about Ed Snider, chairman of Comcast-Spectacor. And, believe it or not, all the foods were making him sick. He dealt with digestive problems and pain for nearly 30 years before getting the right diagnosis.

He's no stranger to the media spotlight. But this time, Ed Snider agreed to sit down and talk about something very personal... years of stomach trouble that no medication seemed to help.

Ed Snider/COMCAST-SPECTACOR CHAIRMAN:

"Finally, I stopped taking them. They said, you know, it's probably nerves. But I'm not the nervous type."
At one point, it got so bad he lost 25 pounds. Finally, a doctor at Penn diagnosed Celiac Disease.
"I have had it since I was a young man. But I didn't know it."
Celiac disease is genetic, but not always evident from childhood. It causes a severe immune reaction to gluten, a protein found in wheat, barley and rye.

Usually, there are symptoms like chronic diarrhea, abdominal pain, or bloating, as the gluten destroys the small intestine. You could see a normal intestinal lining, and one damaged by Celiac Disease.

"It's poison to almost 3 million Americans, but most of them don't know they have the disease."
Alice Bast launched the National Foundation for Celiac Awareness after her personal ordeal, which began 15 years ago.

Alice Bast/Celiac Patient:

"I thought I was dying. My hair was falling out, my teeth were breaking. I had a full-term stillborn child."
It turns out Celiac disease may have affected her body's ability to nourish her unborn child. She almost lost a second baby the same way. Later, after visiting nearly 2-dzeon doctors, Bast got an accurate diagnosis and learned Celiac can contribute, not just to miscarriages, but also to fertility problems, anemia, brittle bones, and diabetes.

People may also have unexplained skin rashes and joint pain, conditions few doctors connect to Celiac Disease.

Ed Snider: "I think those people, if they haven't had any success with medication or anything else, should be checked. Because I think it's misdiagnosed."

Dr. Anthony DiMarino/JEFFERSON UNIVERSITY HOSPITAL:

"It's easily diagnosed by certain blood tests initially, and then a sampling of the small intestine taken through an endoscope."
Dr. Anthony DiMarino says curing Celiac Disease is simple, but takes commitment. Patients have to follow a gluten-free diet, for life.

Emily Rubin, R.D./JEFFERSON UNIVERSITY HOSPITAL:

"Once you take the gluten out, you are perfectly fine."
Dietician Emily Rubin says even 1/48th of a slice of bread can trigger intestinal damage, so there's no cheating. She shows Celiac patients wheat-free alternatives, and how to read food labels for additives that may be hiding gluten, ingredients like modified food starch or malt flavoring.

Who would guess that bacon bits or chicken broth are processed with starches made from wheat? If people with Celiac stick to a gluten-free eating plan, the digestive system can heal in 3 to six months. And a lifetime of discomfort can disappear.

Snider: "This is almost two years, I haven't had one stomach problem since! I am 71 years old. I am bigger and stronger than when I was at 30."

  • www.celiacawareness.org

    Bob and Ruth's Gluten-Free Travel and Dining Club which helps people dine out, or take trips - all without the worry of trying to find gluten-free food.

  • www.bobandruths.com

    Last Updated: Dec 14, 2004

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