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Hi. I was diagnosed by endoscopy in September. I
was very sick, and had dangerously low potassium, anemic etc. My doctor was
incredible, she kept running labs to check for different things, and got me on
the proper supplements right away. I know she saved my life. I felt like I was
dying. Before diagnosis, I was always suffering from anemia and headaches, but
it was manageable. I took iron, but never absorbed it, and my previous doctors
didn’t make a big issue of it. There was never a search for why I had
malabsorbtion problems. I always ate a lot and never gained weight.
I have had 4 children, all of which were around 6 pounds at birth and I was extremely anemic with all my pregnancies. I have one son with autism, he is 13 years old now. He’s my first born. I have always had sore bones, and felt sort of "out there" from time to time. I really feel now, that although I was diagnosed after being very sick this September, I feel now like I’ve had the Celiac Disease since I was a little girl. I was very tiny, late with puberty, etc. I’ve read the symptom list, and I had almost everything on it when I was little. I think I’ve kept myself alive with Excedrine... kept myself going. I really hope that manufacturers will begin to make more foods gluten free. It’s very frustrating for me to have to read labels so closely, with Gluten having so many other names. Today I have tried very hard to be gluten free, since diagnosis, and I do feel a lot better. My last labs showed I have almost normal levels of nutrients as well. I’m trying hard to heal and be well. I am terrified about the neurological statistics, and pray I don’t develop anything neurological. I just began fish oil pills today. I take potassium supplements, vitamins, and now fish oil, and I try to dodge crumbs of gluten. And I do feel a lot better. A lot better already. |
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