National Foundation for Celiac Awareness

What is Celiac Disease?
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Personal Stories
Aimee
A.J.
Alice
Allison
Alison
Alyssa
Angela
AnnaMarie
Anne
Anne
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Ashley P.
Betty
Bill
Carter
Charity
Christine
Daniel
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Ed Snider
Elaine
Jane
Jayme
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Jebb
Jocelyn and Kyle
Jill
Jim
Jim
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Julie
Julie E.
Kim
Laura
Lea Ann
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Lindsay
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Mary and Joe
Maya
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Melanie J.
Melissa
Michael
Nancy
Paul
Roberta
Sandy
Sarah
Sarah J
Sunnie
Susan
Teresa
Teresa and Melanie
Terri
Theresa
Tiffany
Vanessa
ViVi
How Common Is Celiac Disease?

Teresa's Story

Hi. I'm Teresa. I do not have celiac, but my husband was diagnosed with it about three years ago. It is such a long story. Sometimes I feel like I have to deal with the disease more than he does. Before he was diagnosed I delt with his mood swings and now I have to create meals every night that we can all eat as a family. So, I guess I'm telling my story so I can get sympathy. We think the death of his Mother combined with financial stress triggered it. Although when his sisters tell childhood stories, sometimes I think he has always had it. I saw a picture of him one time when he was about one year old. His stomache was bloated like a malnourished child in a foreign country. We wonder if his Mother had it too because she was extremely bloated. We would ask doctors about it and they said they did not know why she was so bloated. We thought that Johnny was grieving over his Mother's death. But as time went on and it seemed as though he should be getting better, he was still depressed. He would get angry real easy and he slept a lot. Our daughter claimed one afternoon, "I want my Daddy back!" I kept telling him to go to the doctor and get on an anti depressant. I thought our marriage was not going to last. We had no idea he was sick. WE even decided that he was going through mid life crises except that he did not want to buy a motorcycle. His sister had been diagnosed with celiac about a year before and she kept telling Johnny to be tested for it, but he just shrugged her off. While he was talking to the doctor, he decided to half mention what his sister had told him. A simple blood test, a change of diet and within a week he was a different man. It was like a miracle. Dealing with meal plans, eating out, and family get-togethers is a breeze compared to the year he was sick. My most discouraging problem now is the grocery store not carrying the products that he needs. Wild Oats is far from our house and ordering is so inconvenient. I usually just cook old fashion meals. Tonight is Hormell ham, dried Northern beans(cooked all day in crock pot), and white rice. I'm out of potato starch so no cornbread tonight. Thanks for listening.