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May 2012

May 2012                                                            Subscribe to Celiac Central's Monthly Newsletter

Alice Bast, NFCA Founder and PresidentNote from Alice

NFCA Founder & President

Celiac Awareness Month: KISS and Tell

May is National Celiac Awareness Month, and I’m thrilled to be part of another action-packed celebration here at NFCA.

This year, our theme is KISS: Keep It Simple and Safe, and it’s a message we’ve taken to heart. Last week, we announced that we are expanding GREAT Kitchens, our gluten-free training program for restaurants. To learn more about the new multimedia training modules, watch this video, then check out CeliacCentral.org/GREATexpansion.

While our GREAT expansion will make it safer to dine out, our Gluten-Free Pantry Raid will help you KISS your cooking fears goodbye. Whether you have a dedicated gluten-free kitchen or share it with gluten eaters, it’s important to keep every ingredient, pot, pan or utensil that you use 100% gluten-free. Easier said than done, right? Well, if you show your support by donating $20 or more to NFCA this month, you just might get a visit from me and a slew of gluten-free goodies. Don’t worry, I’ll bring along a dietitian for some professional advice as we organize your cabinets.

Finally, our Celiac Awareness Month blogger campaign is back! This year, some of your favorite gluten-free bloggers will be sharing 5 Ways to Keep It Simple and Safe, from your first time dining out, to the best ways to get your gluten-free recipes published.

Read more about these events and other Celiac Awareness Month activities on our special webpage: Celiac Awareness Month 2012.

 In Great Health,

Alice Bast


Congratulations, Alice!

Foggy Award Winner 2012NFCA Founder & President Alice Bast has won the 1st Annual Foggy Award for Lifetime Achievement. From now on, this honor will be known as the Alice Bast Lifetime Achievement Award.

Hosted by Find Me Gluten-Free, the Foggy Awards recognize individuals dedicated to gluten-free awareness. The winners were determined based on votes by the public - that means you helped earn Alice this award!

Thank you to all who voted for Alice. We are thrilled to start off Celiac Awareness Month with this achievement!


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Tid Bits with Turbin

Gluten-Free Apps: Can Your Child Use One?

By Miranda Jade Turbin

There seems to be an app for everything these days, and it’s no different in the gluten-free community. There are numerous gluten-free apps available on the market. If your child is old enough and has an iPhone, iPad or Android, you’ve probably wondered what apps are out there for gluten-free kids. At the very least, you’ll want to download at least a couple yourself to help with challenges of being the parent of a celiac child.

You can find apps for dealing with all sorts of aspects of your child’s gluten-free lifestyle, such as travel, grocery shopping, and eating out. Some are just for gluten-free users, and others are for the broader food allergy community.

Most apps aren’t useful to younger celiac children, but you can sure use them yourself or with your child. For example, if you want to find some recipes that will appeal to your child, a useful app is Allergy Free Entertaining, by Melinda’s Gluten Free Goodies. This app is designed to help the food allergy community plan a dinner or dinner party with recipes and grocery shopping lists. You can use the app with your gluten-free kid as follows: together, choose whether you’re looking for something savory or sweet, then select from choices of a snack, main meal, dessert, meal for entertaining, or something for a lunch box. Then you can choose what you want the dish free of, based on your child’s dietary needs: gluten, wheat, dairy, egg, soy, or nuts, and whether you want it to be low sugar, vegetarian, vegan, or even child-friendly. If your celiac child has intolerances to other foods, this is a tremendously useful app.

If you’ll be traveling with your celiac child, check out Gluten Free Ultimate Solution by G-Free Foodie, which uses GPS and special search features to find restaurants with gluten-free options in the area. GlutenFreeTravelSite mobile version contains a user-friendly search function perfect for vacations with gluten-free kids. If you eat out frequently with your celiac child, and especially if you live in a large area, a restaurant guide app is good to have on hand, and it’s much easier to carry around than a book. Gluten-free travel apps can be used for this purpose as well as iEatOut Gluten & Allergen Free by AllergyFree Passport.

Apps can help you shop for your celiac child too. Gluten-Free Grocery Guide by Triumph Dining is an app version of Triumph Dining’s popular book, containing information on more than 30,000 gluten-free products. Food SmartList for SmartPhone and Is That Gluten-Free? are also useful for parents of celiac children.   

Celiac and gluten sensitive children don’t really need a gluten-free app themselves, but by all means, get some for yourself! These apps can make being the parent of a celiac child much easier, and you can use them with your child to help him or her learn how to pick out gluten-free products, restaurants, and recipes--perfect practice for adulthood.

About Miranda Jade Turbin

Miranda Jade Turbin became extremely interested and involved in the subjects of celiac disease, gluten sensitivity and gluten issues a number of years ago, after being diagnosed as celiac after many years of unresolved troubles. Since then, she has engaged in diligent research and writing about these topics, developing gluten-free recipes and reviewing companies for celiac consumer safety at the award-winning website: GlutenFreeHelp.info.

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Cooking with Oonagh

Gluten-Free Recipes for Mother’s Day

By Chef Oonagh Williams

I was trying to do a menu that would be easy for Dad to make with the kids, but actually many men are very handy in the kitchen and like to cook fancier foods.  These gluten-free recipes are a little more sophisticated, and Mom is sure to appreciate them on May 13!

Gluten-Free Crepes with Creamy Chicken FillingNATURALLY GLUTEN-FREE CRÈPES FILLED WITH CREAMY CHICKEN
These are quite ‘sturdy’ crèpes and could take the place of a corn or flour tortilla. They are not the dainty, lacy crèpes I use for a sweet crèpe. They can be made in advance and finished in the oven for Sunday brunch, a dinner party, etc.

Gluten-Free Lemon Almond Cake with Cream FillingLEMON ALMOND CAKE WITH LEMON CREAM FILLING
I tried to make this cake fairly quick and easy to make since no one has the time to be in the kitchen for hours. This is a variation on my almond tart recipe (February 2011 Celiac Central newsletter). Frequently I only make a single cake layer since that is ample for most families without overindulging in dessert. The cake layers are less than one inch deep.

About Chef Oonagh Williams

Chef Oonagh WilliamsBritish-born award-winning chef Oonagh Williams has a culinary arts degree and was trained in London and Switzerland. Based in New Hampshire, Chef Oonagh began adapting meals to gluten-free versions after her son was diagnosed with gluten and lactose intolerance two years ago. Chef Oonagh gives presentations and classes on gluten-free cooking and living, consults and guides people in adapting to a gluten-free lifestyle. She appears most months on her local New Hampshire ABC station, WMUR, as the featured chef. 

To learn more, visit Chef Oonagh’s website at www.RoyalTemptations.com or ‘Like’ her at Gluten Free Cooking with Oonagh on Facebook.

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Gluten-Free Pantry Raid: Win a $2,500 Makeover!

   Gluten-Free Pantry Raid Banner   

Knock. knock. It’s the National Foundation for Celiac Awareness, and we’re here to take over your kitchen.

This May, make a donation of $20 or more to NFCA and you’ll automatically be entered to win a Gluten-Free Pantry Makeover.

The grand prize winner will get a special in-home visit from NFCA Founder & President Alice Bast, armed with a slew of gluten-free products and some handy tools (label maker, anyone?) to create a fully stocked and well-organized kitchen.

Whether you have a fully gluten-free or a shared kitchen, this is your chance to start fresh.

     Donate now to enter the Gluten-Free Pantry Raid     

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Research Notices

Survey on Fertility and Celiac


Jefferson Celiac Center is looking for adults ages 18+ to take a brief survey on celiac disease and fertility. Researchers hope this study will clarify inconsistencies in the current literature, increase physician knowledge of this issue and gain awareness for the celiac community.

Medical research team

Take this Survey: Fertility in Celiac

Patients with Celiac Needed for Phase 2B Clinical Trial


Alba Therapeutics is recruiting individuals with celiac disease for the next phase of its clinical trial. The clinical trial focuses on the use of a drug called larazotide acetate to reduce the inflammatory process in response to gluten.

Learn more about this clinical trial: Alba Therapeutics Phase 2B Clinical Trial


Case Study: 7-Year-Old with Nausea, Vomiting and Symptoms of ADHD

By Vikki Petersen, DC, CCN

Blue StethoscopeA lovely young lady, age 7, came in with her mother last August with a history of chronic stomach pain, nausea, vomiting and symptoms of ADHD. For such a young child she had already experienced more surgeries and ER visits than most of us have in a lifetime.

Beginning at age 3 during a family visit to Hawaii, she contracted a severe infection (Mononucleosis) and after that she began to experience symptoms of nausea, pain and vomiting. She was diagnosed with 26 episodes of ‘stomach flu’ during the next 3 or 4 years...

Read the rest of this article: Case Study: 7-Year-Old with Nausea

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Crunchmaster: Happy, Healthy, and gluten-free


Alternative Appetites: Penne with Zucchini, Tomatoes and Cream

By Dan Kohler of Renegade Kitchen

Dudes. Make this for your special someone. Make it for the kiddos, too. Whether you’re cooking for your whole family or a hot date, this dish packs everything in one skillet. Veggies, pasta, cheese, duh. If you need to practice, you can come cook for me. But you might want to put on some nice clothes. I’m picky.

Sponsored by The Hain Celestial Group, Inc.

Want the recipe? Visit NFCA’s Recipe of the Week on Monday, May 7.

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Win a Gluten-Free Pasta Party

This Celiac Awareness Month, NFCA and The Hain Celestial Group, Inc. will help 5 lucky winners rediscover the fun of pasta parties.

By leaving a comment on a photo in the DeBoles Gluten-Free Pasta Party album on NFCA’s Facebook page, you can be on your way to “mangia” with friends.

DeBoles Gluten-Free Penne1. Visit the DeBoles Gluten-Free Pasta Party album on Facebook.

2. Choose a photo and leave a comment telling us why you deserve a gluten-free pasta party.

3. Ask family and friends to “Like” your comment.

Winners will be randomly selected from the comments that receive the most “Likes”!

Get the full details here: DeBoles Gluten-Free Pasta Party

Learn more about DeBoles and other gluten-free products from The Hain Celestial Group, Inc. at www.GlutenFreeChoices.com.

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Allergic Living Sneak Peek

Control Your Weight on the Gluten-Free Diet

By Shelley Case, RD

I am excited to partner with the National Foundation for Celiac Awareness (NFCA) to offer a quarterly column on healthy gluten-free eating that will feature practical strategies, tips and recipes. Let’s start off with a focus on weight management and the gluten-free diet.

Shelley Case, RDThere is so much confusion on this topic. You’ll hear of celebrities like Russell Crowe lauding the gluten-free life as their ticket to weight loss. The word is that Lady Gaga, in the quest for onstage bloat control, doesn’t allow her dancers to eat wheat. But it’s time for a reality check: the truth is that many people who give up gluten because of celiac disease or non celiac gluten sensitivity struggle with weight gain not loss. So here are some important tips to maintain your healthy weight on the gluten-free diet...

Read Shelley's tips: Control Your Weight on the Gluten-Free Diet

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You Did It!

“You Did It” is a new section of NFCA’s newsletter where we’ll share stories and advice from NFCA volunteers. We hope these articles will inspire you to take action and say “I did it!” today. For more volunteer stories, see NFCA's Awareness All-Stars blog.

Class Project Raises Celiac Awareness

A special thank you to 5th graders Teagann and Eliana and their teacher Jeff Govoni of High Tech High in San Diego, CA. They used NFCA’s resources in their class presentation about celiac disease. Eliana has celiac disease and wanted to share this important information with her classmates. Looks like we have some Awareness All-Stars in training!

Mrs. Alaska International Earns Celiac Awareness Month Designation

Congratulations to Brandy Wendler, Mrs. Alaska International 2012 and a big supporter of NFCA. Brandy's bill to designate May as Celiac Awareness Month was approved by Alaskan state legislature. Thanks to her hard work, the entire state will become more aware of celiac disease and gluten-free needs!

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Celiac Awareness Month: Free Ways to Fundraise

“You Said It” is a new part of NFCA’s newsletter where we share something insightful that YOU said on Facebook or Twitter. Join the conversation with NFCA on Facebook and Twitter.

Here are two simple ways to support NFCA this May - at no cost to you!

Rudi’s Spread the Bread
Get a dollar, give a dollar. Simple as that.

Rudi's Gluten-Free BakeryRudi’s coupon campaign is back, but this time you get to choose who benefits. Download a coupon to get $1 off Rudi’s Gluten-Free Bread and they’ll donate $1 to a celiac disease organization of your choice – including NFCA!

Visit Rudi's Gluten-Free Bakery on Facebook

The GFB (Gluten Free Bar) Celiac Awareness Sweater Project
Don a sweater for a donation.

Gluten-Free Bar Sweater FundraiserThe GFB Celiac Awareness Sweater Project is a fundraising effort involving a special sweater and a passionate gluten-free community.

Starting in Seattle, the GFB sweater will make its way around the country. Anyone who tries on the sweater will be encouraged to take a photo while wearing the sweater and submit it in support of NFCA.

For every photo submitted to sweater@theglutenfreebar.com, The GFB will make a donation to NFCA of at least 25 cents per picture. There’s no defined end date for the fundraising sweater, so let’s see where it goes and raise awareness along the way. It will be an interesting ride.

Find out more on The GFB’s website

    

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COMING ATTRACTIONS

State of the Union: A Live Chat with Experts on Gluten-Related Disorders

 

Thursday, May 3, 2012 (TODAY!) at 2 p.m. ET

Celiac Awareness Month 2012 Badge
NFCA will kick off Celiac Awareness Month with a 60-minute live, streaming broadcast featuring Alessio Fasano, MD, Stefano Guandalini, MD, and Melinda Dennis, MS, RD, LDN. Moderated by Alice Bast, NFCA Founder and President, the panelists will provide a “State of the Union” on gluten-related disorders.

Register now for the Live Chat with Experts on Gluten-Related Disorders

Supported by a generous anonymous donor with a passionate interest in health and wellness.

Celiac Awareness Month Tweet Chats

Twitter bird
Join NFCA (@CeliacAwareness) for these hour-long chats on Twitter. VisitTweetChat.com to follow along or participate.

May 9: Tweet Chat with Smart College Visit (@collegevisit)
Time: 9 p.m. ET
Topic: Gluten-Free College Students
Hashtag: #CampusChat

May 23: Tweet Chat with Joy Keys (@joykeys)
Time: 7 p.m. ET
Topic: Celiac Disease and Non-Celiac Gluten Sensitivity
Hashtag: #smjkceliac

For more gluten-free and celiac awareness events, visit our Upcoming Events page.

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GREAT

All Things GREAT: Gluten-Free Resource Education and Awareness Training (G.R.E.A.T) Program Update

NFCA Launches GREAT Expansion, Heads to National Restaurant Association Show

As you read in this month’s Note from Alice, NFCA has announced that it is updating and expanding its GREAT Kitchens program, including new multimedia training modules. Restaurants are encouraged to contact Beckee Moreland at beckee@celiaccentral.org or 215-325-1306 x105 to express their interest in gluten-free training.

Learn more about the GREAT Kitchens Expansion »

NRA Show square iconNFCA will promote this new system at the National Restaurant Association (NRA) Show, May 5-8, 2012, in Chicago. NFCA will also be at the show to deliver a presentation on “How to Serve GREAT Gluten-Free Meals.”

This is the third year in a row that NFCA is an active participant at the NRA show. In 2011, NFCA led a panel presentation at the annual gathering of foodservice professionals. In 2010, NFCA hosted the first Gluten-Free Pavilion at the NRA Show, featuring gluten-free samples and education.

*Tell your restaurant it's time to get GREAT*
Learn more about gluten-free training from NFCA »

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HOT PRODUCTS

By Cheryl McEvoy, NFCA Online Content Manager

FlaxUSA Flax Milk

Welcome the newest member on the gluten-free, dairy-free block: Flax milk. This non-dairy alternative is creamy, slightly sweet, and full of those healthy omega 3s. I enjoyed my flax milk over gluten-free cereal, but it also could work in smoothies, curries or served plain over ice. It has a higher fat content than other dairy-free alternatives, but logs a mere 50-60 calories per serving.

Visit FlaxUSA

Vigilant Eats Superfood Cereal

It was a pleasant surprise when a cup of Vigilant Eats Superfood arrived at our office. This small but mighty cup of cereal comes ready-to-eat and packed with nutritious goodies like certified gluten-free oats, hemp flour and goji berries. All I had to do was add water, give it a stir, and enjoy. The cereal was slightly sweet and very flavorful – far from the cardboard that some expect from a “superfood.” There are even some cacao nibs, which gave it just the slightest bit of indulgence – without the added sugar of a chocolate chip. It’s also loaded with protein, so I was full by the time I scraped the bottom.

Visit Vigilant Eats

Posh Pop Bakeshop

Another surprise find was Posh Pop Bakeshop, which we discovered while (wo)manning a booth at a women’s health fair last month. The bakery makes gluten-free treats like cupcakes and cake pops, with plenty of sprinkles and flair. My favorite was the vanilla cupcake with vanilla icing, which was sweet and moist with no bitter aftertaste. The bakery also makes gluten-free cookies, loafs, pie and cheesecake – all made with organic and natural ingredients, and no artificial coloring.

Visit Posh Pop Bakeshop

The GFB (Gluten Free Bar)

This nutrition bar is far more than gluten-free. It's also vegan, all natural, dairy-free, low sodium, a good source of omega-3, contains 12g of protein, and more. It's a chewy, nutty bar that doesn't look like much, but has good flavor - my favorite being Peanut Butter Chocolate. The bars are made with things like dates, brown rice syrup and agave nectar, which make them sweet without any artificial flavorings. Best of all, the folks at The GFB are running a creative fundraiser for NFCA this May (it involves a traveling sweater). Read more about the fundraiser in our Free Ways to Fundraise section of this newsletter.

Visit The GFB

*Get Hot Products updates from NFCA every week!*
Visit our Gluten-Free Hot Products blog »

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Easy Eats


Celiac in the News 

By Wendy Gregory Kaho, NFCA Social Media Specialist

Radiation Risk for Gastro Patients

A new study suggests that patients with digestive disorders, including celiac disease, may be exposed to significant levels of radiation from diagnostic imaging tests. The study has raised concerns because radiation exposure may increase a person’s lifetime risk of cancer, especially in younger patients.

Read more in US News Health

Is Gluten-Free Wheat on the Way?

Researchers are working to modify wheat strains to remove the problematic proteins for those with celiac disease. Currently, wheat is being grown on an experimental farm that has 60-70% of the proteins ‘silenced,’ and researchers believe that in time they can remove 100%.

Read more in the Bellingham Herald

Mixed Reviews for Miley’s Gluten-Free News

The online gluten-free community reacted to news that first Kim Kardashian and then Miley Cyrus announced they were on a gluten-free diet. Bloggers and advocates were concerned that Kardashian’s use of the diet for weight loss was misleading and Cyrus’ disclosure that she had a gluten and dairy allergy led to national coverage of the diet and a move to correct some misperceptions. Many expressed concern that the ‘fad diet’ image and the trendiness of everything gluten-free makes foodservice providers take their needs less seriously. Others are happy to see growing awareness of any kind. NFCA Scientific/Medical Advisory Board Member Rachel Begun, MS, RD, was interviewed by Us Weekly regarding the recent buzz.

Read more in Us Weekly

Hershey Posts Gluten-Free Product List

A long awaited release from The Hershey Company came just in time for the Easter holiday, as the manufacturer published a list of gluten-free chocolate. According to the new gluten-free page on their company site, the products on their gluten-free list “have been fully evaluated and qualify as gluten free using standards proposed by the US Food and Drug Administration (FDA).” They suggest reading the labels on their products to determine if they have gluten-containing ingredients each time a purchase is made to assure that ingredients have not changed.

See the list here: Hershey Company: Gluten-Free

More Ballparks Go Gluten-Free

Gluten-free baseball fans have more to cheer about as more ballparks are offering gluten-free concessions. An ever-growing list of gluten-free concessions and awareness events has fans enjoying hot dogs and washing them down with gluten-free brews in Jacksonville, Tampa, Atlanta, Philadelphia and other fields across the country. The new menu in Jacksonville features half-pound burgers, chicken sandwiches, and pulled pork on gluten-free buns along with those hot dogs, Redbridge beer and Woodchuck cider.

Read more at Jacksonville.com

*Stay informed between newsletter mailings!
Check our News & Blogs for frequent updates »

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This newsletter is proudly sponsored by:

Rudi's Gluten-Free Bakery - 1 dollar off
Kettle Cuisine
Crunchmasters

Allergic Living 10 dollars off

 

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