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July 2012

July 2012                                                            Subscribe to Celiac Central's Monthly Newsletter

Alice Bast, NFCA Founder and PresidentNote from Alice

NFCA Founder & President

You and Your Body Can Be Friends…Really.

When you feel sick, relationships suffer – including the one you have with your body. But now that you’re restoring health and reclaiming your life, are you also recovering confidence in your own skin?

It’s important to remember that your body is constantly changing. You may see immediate improvements after going gluten-free, or it may be more gradual. You may gain weight. You may lose weight. Your skin may feel different. You may find new energy at odd times. And, even years after going gluten-free, you may find yourself needing to adjust your diet to whatever needs arise. 

For many of us, this means a complete reintroduction to our body and the way it operates. After years of battling symptoms, your patience with your body is probably running low. But with some love and acceptance, you and your body can make amends.

Here are some tenets I follow to restore that relationship:

Be patient.

It takes time for your body to heal – and different parts may heal at different speeds. So, don’t be discouraged if things don’t progress as rapidly as you would like, or if something unexpected pops up along the way.

Stop feeling guilty.embrace your new healthy body

Before you were diagnosed, you were “the friend who always needs a bathroom.” Now, you may feel like “the friend who always needs special treatment.” It’s tempting to want to be “normal” and order something without asking your usual questions. Don’t take that risk; it could unravel all the work you put toward keeping your body healthy.

Forgive, but don’t forget.

There will come a point when you make a mistake and eat something that isn’t safe. Instead of kicking yourself and vowing to never eat at so-and-so’s house again, learn from the experience. Should you bring your own food next time? Would you feel more comfortable hosting at your home?

See your doctor regularly.

It’s all too easy to neglect follow-up appointments, especially when you’re feeling great. But you could be doing your body a disservice, especially if you’re unknowingly exposed to gluten. Going to regular check-ups can make sure that your blood levels are on target, plus it gives you a chance to discuss any lingering issues.

Treat yourself.

Everyone deserves something special, including your body. Do what makes yours happy. Take a yoga class, get a manicure or hit the batting cages. And always make sure to get enough sleep. Even if you’re not feeling 100%, reward yourself for the hard work you’re doing to get your health back on track.

Support NFCA by donating today

 


Cheers,

Alice Bast


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Tid Bits with Turbin

Gluten-Free Kitchen Makeover for Your Celiac Child

By Miranda Jade Turbin

Now that your child has been diagnosed with celiac disease, it’s time for a vital step on the road to getting your celiac child gluten-free: a gluten-free kitchen makeover. With a truly gluten-free kitchen, you can feed your celiac child healthy, safe, gluten-free food and also encourage him or her to join in on the cooking fun.

The first step in a kitchen makeover is making sure you have an understanding of celiac disease and the gluten-free diet. You can find helpful resources online or in print or obtain recommendations from your child’s doctor. The only treatment for the disease is the total elimination of gluten from the diet for the rest of your celiac child’s life. This means you must rid your kitchen of gluten or designate a gluten-free kitchen space so you can limit the risk of gluten exposure. Learn about gluten-containing grains and where gluten can hide by reading NFCA’s Getting Started Guide.

 gluten-free family cooking in the kitchen 

It will be up to you and your family to decide whether to make your whole kitchen gluten-free or create a designated gluten-free space in a shared kitchen. If you’re sharing a home with gluten eaters, be sure to have a separate drawer and countertop container for gluten-free supplies, as well as designated spatulas, wooden spoons, and other cooking utensils.

Now it’s time to go shopping for your gluten-free kitchen. Purchase one or two cutting boards, your own toaster, wooden spoons, spatulas, your favorite cooking utensils, a colander, one to two baking pans, one pot for boiling gluten-free grains and noodles, and two fry pans, one small and one large, to be used just for cooking for your gluten-free child. Head to your supermarket and local health food store or do some gluten-free shopping online for gluten-free groceries.

Put these away in the designated gluten-free spaces of your kitchen and fill your gluten-free pantry space with your child’s gluten-free foods. Voilà! Your gluten-free kitchen makeover is complete. Now it’s time to invite your child to come in and practice making gluten-free dishes with you!

Make this for dinner tonight in your made-over gluten-free kitchen:

RECIPE: Gluten-Free Shepherd’s Pie with a Cauliflower Twist


About Miranda Jade Turbin

Miranda Jade Turbin became extremely interested and involved in the subjects of celiac disease, gluten sensitivity and gluten issues a number of years ago, after being diagnosed as celiac after many years of unresolved troubles. Since then, she has engaged in diligent research and writing about these topics, developing gluten-free recipes and reviewing companies for celiac consumer safety at the award-winning website: GlutenFreeHelp.info.

Related Content:

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Cooking with Oonagh

Gluten-Free Recipes for a Summer Picnic

By Chef Oonagh Williams

Gluten-free bean salsaSPEEDY BEAN SALSA/DIP (Island Caviar)
The inspiration for this recipe came from an ad for Tostitos. I altered the recipe considerably since I prefer to “dump” complete containers of beans, corn, salsa etc. rather than measuring out smaller quantities. This salsa has a nice bite to it, no runny nose and tingling lips - at least that’s what we think with the ingredients we use.

ANTIPASTO PLATTERgluten-free antipasto platter
This is one of my favorite appetizers for parties. Simply arrange meats and marinated vegetables on a tray. My recipes for Marinated Mushrooms and Mock French Bread Crostini top it off.

QUEEN’S DIAMOND JUBILEE STRAWBERRY DESSERTGluten-free strawberry and cream dessert - Eton Mess
If you watched coverage of the Queen’s Jubilee last month, you probably saw this dessert created by British Celebrity Chef Heston Blumenthal. The original, far simpler, recipe is known as Eton Mess - a delicious combination of fresh strawberries, whipped cream, and meringues. My version is a blend of simple traditional and updated Jubilee.

About Chef Oonagh Williams

Chef Oonagh WilliamsBritish-born award-winning chef Oonagh Williams has a culinary arts degree and was trained in London and Switzerland. Based in New Hampshire, Chef Oonagh began adapting meals to gluten-free versions after her son was diagnosed with gluten and lactose intolerance two years ago. To learn more, visit Chef Oonagh’s website at www.RoyalTemptations.com or ‘Like’ her at Gluten Free Cooking with Oonagh on Facebook.

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Case Study: 54-Year-Old Woman with Gluten-Related Disorder

By Dr. Vikki Petersen, DC, CCN

[The following is a case study from Dr. Petersen’s practice at HealthNOW Medical Center. The patient’s name has been withheld to protect privacy.]

Y is a 54-year-old woman who came to see us complaining of chronic diarrhea, to the tune of 20 to 25 bowel movements per day. The diarrhea had caused her to be house-bound and she had been suffering for over 8 years.

She also complained of:Doctors examining chart

  • abdominal pain and swelling
  • nausea
  • joint pain
  • sleep disruption due to diarrhea
  • bloating
  • gas
  • mood swings

Prior to visiting us at HealthNOW Medical center, the diagnosis she received was colitis and she was prescribed steroids. She has taken the steroids for the past 3 years, but has found the dose difficult to balance. Either she would have diarrhea or constipation, along with the above symptoms. The drugs were not alleviating her symptoms, and in some cases, making them worse.

She came to us to see if there was anything else that could be done over and above the steroid treatment, as she heard that we specialized in getting to the root cause of health problems. In order to leave her house and not have an accident, she had to not eat for that entire day and the evening before.

Prior to seeing us, a colonoscopy revealed normal bowel structure, which her doctor assumed ruled out celiac disease. [Note from NFCA: A small bowel biopsy is the current “gold standard” for diagnosing celiac disease.] The patient was told that a gluten-free diet was inappropriate for her condition and would not be helpful. The colonoscopy did reveal, however, inflammation of the colon and upper small intestine, thus the diagnosis of colitis was given.

[Note from Dr. Petersen: Per research, a normal lining of the small intestine with increased inflammation (high IELs) is potentially consistent with celiac disease despite no frank destruction of the small intestinal lining.1]

Our blood tests revealed low vitamin D, low vitamin B12 and a positive reaction of her immune system to a portion of the gluten protein known as gliadin (her IgA-tTG [tissue transglutaminase] was negative, but her IgA-AGA and IgG-AGA [antigliadin antibody] was positive). [Note from NFCA: The antigliadin antibody test indicates a reaction to the component of gluten known as gliadin, but not specifically celiac disease. Recommended blood tests for celiac disease are Total IgA, IgA-tTG and IgA-EMA. Read more about celiac blood tests here.]

Within days of removing gluten from her diet, her bowel movements decreased to one per day and this has remained consistent for over a month. She has experienced more energy, and her sleep has vastly improved since it is no longer interrupted with bouts of diarrhea. The patient has also been able to decrease her steroid dose. She still has some issues with bloating and food cravings, which is likely due to chronic nutrient deficiencies

Individuals with gluten-related disorders can have secondary effects, especially when the condition goes untreated. Our next steps are to test the patient for these issues and remedy any that are present. This will include:

  • Evaluating for any infections in the small intestine
  • Determining if she is dairy intolerant or has any other related food sensitivities
  • Checking the balance of good bacteria in the gut
  • Ensuring that she has good enzymes present to digest her food

Needless to say, the patient is thrilled to be no longer house-bound and is beginning to get her life back. She’s frustrated that no one suggested a gluten-free diet to her 8 years ago when the condition began. (We frequently hear such sentiments from patients who have been suffering with a condition that turns out to be completely gluten-related.)

This patient is a classic example of one who “falls through the cracks” of receiving a gluten-related diagnosis due to not meeting the classic parameters of celiac disease. The more we realize that for every one person suffering from celiac disease there are about six suffering from non-celiac gluten sensitivity (an estimated 3 million Americans have celiac disease vs. an estimated 18 million Americans with non-celiac gluten sensitivity2), the more individuals we will be able to correctly diagnose and save from needless symptoms and poor health.

References:

1. A. Sapone, et al. Spectrum of gluten-related disorders: consensus on new nomenclature andclassification. BMC Medicine 2012, 10:13 doi:10.1186/1741-7015-10-13

2. A. Fasano, et al. Divergence of gut permeability and mucosal immune gene expression in two gluten-associated conditions: celiac disease and gluten sensitivity. BMC Medicine 2011, 9:23.

About Dr. Vikki Petersen

Dr. Vikki Petersen of HealthNow Medical CenterVikki Petersen, DC, CCN, is founder of the HealthNOW Medical Center in Sunnyvale, CA, and co-author of The Gluten Effect. Dr. Petersen has been published in national and international medical journals, newspapers and magazines for her cutting edge work in the field of gluten sensitivity. Her commitment to increase the awareness of gluten sensitivity nationally is well recognized. She has a been a featured speaker at the annual Gluten Sensitivity & Celiac Forum held in northern California. HealthNOW Medical Center is a destination clinic, treating patients from all over the country.

    

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Gluten-Free Recipes and Giveaway from Frito-Lay

Did you know many of Frito-Lay’s products are gluten-free? The company known for Lay’s, Fritos and Tostitos has developed a validation process, tested its products and is now adding gluten-free labels to those that contain less than 20 ppm of gluten.

To spread the word, Frito-Lay has developed gluten-free recipes featuring some of their top products - and they asked us to try them out! Naturally, we turned to some of our blogger friends to put these gluten-free recipes to the test.

         Gluten-free Tostitos crust party quiche         

Starting Monday, July 9, we will feature 5 gluten-free recipes from Frito-Lay on CeliacCentral.org, plus insights from the blogger who tested each recipe so you can really know how it tastes. Visit Frito-Lay Gluten-Free Recipe Page.

Best of all, you can sign up on our campaign page to enter a giveaway featuring the Frito-Lay gluten-free products in each of these recipes.

Here’s the schedule:

  • Monday, July 9: Cheryl McEvoy of NFCA’s Gluten-Free Hot Products bakes a batch of Chocolate Potato Chip Cookies.
  • Wednesday, July 11: Erin Smith of Gluten-Free Fun tries out Baked Stuffed Tomatoes.
  • Friday, July 13: Laura Hanley of G-Free Laura makes Tostitos Crust Party Quiches.
  • Monday, July 16: Rachelle King of Blinded by the Bite whips up Chipotle Frito Meringues.
  • Wednesday, July 18: Jenny Manseau of Creative Cooking Gluten-Free rounds it out with Frito Waffles with Mascarpone and Strawberry Compote.

Read more: Frito-Lay Gluten-Free Recipes and Giveaway


Allergic Living Sneak Peek

Is It Safe to Eat the Airline's Gluten-Free Food?

By Gwen Smith

An increasing number of airlines are now offering gluten-free meals and snacks. But if you’re living with celiac disease, the risk of food cross-contamination is always a worry. Allergic Living asked some leading members of the celiac community for their thoughts on the big question: To eat or not to eat at 35,000 feet?

Respondents include:Airplane

Read: Is it Safe to Eat the Airline's Gluten-Free Food?

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Crunchmaster: Happy, Healthy, and gluten-free


You Did It!

“You Did It!” shares stories and advice from NFCA volunteers. We hope these articles will inspire you to take action and say “I did it!” today. For more volunteer stories, see NFCA's Awareness All-Stars blog.

A special thank you to the employees from Liberty Mutual Surety Group from Plymouth Meeting,  PA. On June 22nd, they spent a workday volunteering for NFCA as part of “Serve with Liberty,” a community service initiative that celebrates Liberty Mutual’s 100 year anniversary.

  Liberty Mutual Volunteers at NFCA headquarters  

The group included Team Leader Margaret Rahill, Ashish Patel, June Pinkney and Peter Schiesser, who worked with NFCA’s Nancy Ginter, Suzanne Welz, and volunteer Barbara Powers to complete a variety of program-related administrative tasks.

“They moved mountains in the time that they were with us,” Nancy said.

All of us at NFCA are grateful to Liberty Mutual for offering this day of service and we look forward to working with Peggy and June, as they have decided to continue volunteering at NFCA!

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Coming Attractions

Celiac Awareness Night at the Phillies: Friday, July 20, 2012

Join NFCA for a fun and fan-filled night at the ballpark. Watch as the Philadelphia Phillies take on the San Francisco Giants while enjoying gluten-free food and drinks.

When: Friday, July 20, 2012

Time: 7:05 p.m.

Where: Citizens Bank Park
              Philadelphia, PA

Tickets: To order tickets, please contact Stephanie Nieland in the Group Sales Office at 215-463-5000 ext. 5654. Remember to use the code CELIAC when ordering.

Free Webinar: Thursday, July 26, 2012 at 8:30 p.m. ET/5:30 p.m. PT


Setting the Record Straight: Dispelling Gluten-Free Manufacturing and Production Myths

The gluten-free market is booming, and while that means more options are on shelves, it also makes it harder to tell whether a product is truly gluten-free. While there are many conscientious gluten-free manufacturers taking the strictest precautions to ensure safe products, people might need help deciphering nutrition labels.  Tricia Thompson, MS, RD will give a 60-minute talk and provide an explanation of 20 ppm, discuss the role of food safety in gluten-free manufacturing practices, and clear up popular myths that bombard the gluten-free market.Frito Lay logo

  Sponsored by Frito Lay, this webinar is free of charge.
 

Register now for NFCA's free webinar on July 26

 

Free Webinar: Thursday, August 16, 2012 at 2 p.m. ET/11 a.m. PT


Cross-Contamination in Restaurants: Consumer Educational Session

Last month, NFCA asked you to share your gluten-free dining concerns. Now, your questions and comments are guiding the development of a special webinar on cross-contamination in restaurants. This educational session will feature a panel of third party industry experts, including both foodservice and healthcare professionals. The session will be presented online and will focus on three core goals: education, empowerment and advocacy - the cornerstones of NFCA’s mission.

Panelists and registration details will be announced within the next 2 weeks. Sign up to receive updates on this webinar here: Tell Us at NFCA

Appetite for Awareness: Sunday, September 23, 2012


NFCA will host its signature gluten-free fundraiser at the newly remodeled Historic Strawbridge Building at 8th and Market Streets in the heart of Philadelphia. Enjoy delicious gluten-free bites from area restaurants and take home samples of the newest gluten-free products.

Appetite for Awareness

Highlights include:

  • Gluten-Free Cooking Spree: Philly’s top chefs serving with top doctors from the Greater Philadelphia area. Restaurants include: Melograno, El Rey, Alma de Cuba, and more!
  • Chef demos in front of the Grand Staircase
  • Children’s Pavilion with kid-friendly gluten-free food and fun
  • Exhibitor showcase with free samples
  • Gluten-Free Beer Garden with flat-screen TVs (Watch the Eagles play the Arizona Cardinals in an away game!)
  • The opportunity to win a 1-year lease on a Mercedes-Benz  (Details here)

When: Sunday, September 23, 2012

Time: 1-5 p.m. ET

Where: The Historic Strawbridge Building
              8th and Market Streets
              Philadelphia, PA

Register now for Appetite for Awareness

Follow event updates at www.CeliacCentral.org/a4a

For more gluten-free and celiac awareness events, visit our Upcoming Events page.

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GREAT

All Things GREAT: Updates from NFCA's Gluten-Free Industry Initiatives

NFCA Advocates for Gluten-Free Community at KeHE Holiday Show

In early June in Chicago, NFCA’s Beckee Moreland spent the weekend advocating for the gluten-free community at KeHE Distributors’ 2012 Holiday Show.  Each year, the KeHE trade show draws representatives from independent and chain grocery stores, specialty food retailers, food manufacturers, and chefs, among others.  Vendors come to display their products and attend various industry-related workshops and educational sessions. 

As an expert in gluten-free, Beckee hosted an NFCA booth as well as gave a presentation to food suppliers and retailers called “Gluten-Free in the Grocery.”  Not only did Beckee’s presentation encourage grocery stores to learn about safe gluten-free food preparation through NFCA’s GREAT Kitchens program, but she also gave them tips on how to make shopping more convenient for their gluten-free customers.

 Beckee Moreland with Chef Duff at KeHe Holiday Show 2012 

By exhibiting at trade shows such as the KeHE Holiday Show, NFCA is working to ensure the food service industry understands the seriousness of celiac disease, non-celiac gluten sensitivity and the impact of gluten on those afflicted with gluten-related disorders. Currently, NFCA is working to roll out new modules of the GREAT Kitchens program focused on educating each section of the restaurant on the importance of protecting gluten-free food from cross-contamination. Modules include: The Gluten-Free Guest, Ingredients, Front of House, Back of House and Implementation.

Learn more about the GREAT Kitchens program and the new training modules that will be rolling out throughout the year on the GREAT Expansion page.

GREAT in the News

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Hot Products: Fancy Food Show Special

By Cheryl McEvoy, Director of Communications and New Media, NFCA

Last month, I had the pleasure of attending the 2012 Summer Fancy Food Show in Washington, DC. The exhibit hall features some of the hottest products in everything from snacks to sauces to natural and organic foods. You bet there were a lot of gluten-free options! Here are some picks:

Lucy’s Brownie Cakes and New Cookie Flavors

Our good friends at Lucy’s have several new products coming to market. First up, there are Brownie Cakes – a rich dessert that is bigger than brownie bites and more portable than the typical brownie square. Then there are Snack N’ Go Packs, which takes the company’s top gluten-free cookies and bundles them in a convenient 3-pack, perfect for lunchboxes. What I’m most excited about, though, are the new cookie flavors – Holiday Sugar and Chocolate Merry Mint. The mint variety tastes just like the inside of a Girl Scouts cookie, but it’s gluten-free!

www.drlucys.com

Crunchmaster Cheezy and Grammy Crisps

Crunchmaster has tapped into the kids sector with new Cheezy and Grammy Crisps. The triangle-shaped snacks look more like the “regular” crackers kids are munching on at school. The Cheezy Crisps have a strong cheddar flavor and a bright orange color to match. The Grammy Crisps are coated in cinnamon and sugar. They are a treat on their own, but would also pair well with pudding or crumbled over ice cream.

www.crunchmaster.com

Justin’s Nut Butter Candy Bars

As I strolled up to Justin’s booth, I spotted an enticing candy bar with nuts, caramel and nougat covered in chocolate. Surely this couldn’t be gluten-free, I thought. Indeed it is – certified gluten-free, to be precise. The candy bar is chewy and indulgent – a blissful combination of salty and sweet. Best of all, there are milk chocolate and dark chocolate options. Yum!

www.justinsnutbutter.com

Mediterranean Snacks Hummuz Crispz

I’ve been a fan of Mediterranean Snacks Cracked Pepper Lentil Chips since I sampled them at last year’s Fancy Food Show. This year, they launched Hummuz Crispz, which are made from garbanzo beans. As their description says, they are “lighter than a cracker, sturdier than a chip,” and that holds true. I tried the Olive Tapenade flavor, which has actual bits of olive baked right in. I’d recommend pairing this chip with fresh bruschetta or eggplant dip.

www.mediterraneansnackfoods.com

Naturally Laurie’s

The folks at Naturally Laurie’s did their homework. They polled gluten-free consumers on their favorite alternative pastas before settling on a corn-based pasta for their gluten-free soups and meals. Their standout items are a line of Gluten-Free Entrees, which can be made by simply adding water and heating. I see big potential for these in dorm rooms and bachelor pads – not to mention as a quick fix for anyone who struggles to put a meal together on a weeknight.

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Celiac in the News

By Alicia Carango, NFCA Communications Assistant

Allergy Free Dining

An increasing number of restaurants are catering to the needs of the 15 million Americans living with food allergies and the estimated 3 million Americans living with celiac disease.  Restaurants such as The Melting Pot have introduced safety procedures to protect diners with special dietary needs, but other restaurants need more education on allergy safety.  Safe dining tips and resources for restaurants and diners alike are available in this article.

Read more from The Wall Street Journal

Better Gluten-Free Baking Methods on the Horizon?

Solanic, a Dutch ingredients firm, analyzed gluten-free breads from leading European and U.S. manufacturers only to discover how quickly the breads went stale and did not have the appropriate consistency.  Working with potato proteins, Solanic says they can create better gluten-free bread that could improve the bread’s shelf life and produce better color and shape.

Read more from Bakery and Snacks

NFCA Founder and President Broadcasts Celiac Awareness

NFCA Founder and President Alice Bast appeared on “Health Talk,” the longest running syndicated health radio show.  Together with host Dr. Ronald Hoffman, Alice discussed a wide range of topics including her experience with celiac disease, diagnosis issues, misconceptions about the gluten-free diet and more.  The interview aired on WOR-710 last month and is archived for download from the station’s website.

Read more on Celiac Central

Need a Pocket-Guide to Find Gluten-Free?  There’s a New App for That.

The Academy of Nutrition and Dietetics released a new app for the iPhone that goes beyond listing out gluten-free recipes.  The Gluten Detector Tool pulls information from the food allergen labeling rules from the FDA and USDA to help users identify which foods contain gluten and which ones do not.  The app can be purchased through the iTunes store.

Read more from FoodManagement.com

NFCA Joins Dr. Schar for the Grand Opening of Its First US Production Facility

Dr. Schar, one of the world’s leading gluten-free food manufacturers, opened its first US production facility on June 21.  Schar celebrated the launch of the new facility by inviting industry experts and the gluten-free community to share in their ribbon cutting ceremony. The event included speeches from New Jersey’s Lieutenant Governor Kim Guadagno and “True Bloods” star Jennifer Esposito, who has celiac disease.  Among the 200 attendees were NFCA’s very own President and Founder Alice Bast, Director of Finance Sue Gardner, and Healthcare Relations Manager Kristin Voorhees. 

Read more on Celiac Central

    

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