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Celiac Disease Personal Stories


Celiac kidsCeliac disease can present in different ways, and these stories prove it!

Browse the entries in each section to see how others took charge of this often misdiagnosed condition. In many cases, you may have a lot in common.

Ready to speak up? Share your Personal Celiac Story

Think you may have celiac disease? Stop wondering, start healing


One of the most common symptoms of celiac disease is digestive complications. This can range from stomach aches after eating to frequent diarrhea and constipation.


Many people with undiagnosed celiac suffer from frequent and incredibly painful migraines and cluster headaches.

Skin Rashes

A common symptom of celiac disease is a condition called dermatitis herpetiformis, a specific type of skin rash. Skin conditions can also include severe acne and other types of unexplained rashes.

Pregnancy and Fertility Issues

One of the most devastating symptoms of celiac disease for women, is the loss of a child in utero. Developing babies cannot absorb nutrients if their mother isn’t and thus often do not survive to full term.

Child Development

Children with undiagnosed celiac are often smaller, weaker and more poorly developed than other children their age.


Because celiac disease makes it difficult to absorb nutrients from food, important nutrients like calcium and vitamin D are not absorbed into the body, which leads to weak bones.


People with undiagnosed celiac often report being constantly exhausted and fatigued. Many say they feel weak and like they have no energy.

No Symptoms

Some people with celiac disease have no symptoms at all, making it even harder to detect the condition. See how these individuals got diagnosed.

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