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Renee's Story

 
6/15/2011

Our 18-month-old daughter Madison was just recently diagnosed with celiac disease. She was born an average weight at 3150 gms and a bit on the short side at 48.5 cm.

For the first 12 months, Madison struggled with weight gain; she went up and down and always had a bloated stomach that we attributed to her short stature. When she reached 15 months, she weighed 10 kgs. The doctor wasn't too concerned, since Madison was small in all other areas and it wasn't affecting her eating.

We started to get a bit concerned when she was 17 ½ months, as she started getting really bad diarrhea in the morning for about a week (I had to change the sheets every day). She also was very clingy, and people constantly commented on her huge stomach!

We thought it was time to take a trip back to the doctor and find out what was going on. Stool and urine tests came back normal, but she continued to lose weight. At this stage, she was 7.6 kgs at almost 18 months and 77 cm tall. This was extremely scary for us.

The doctor referred us to a pediatrician, where he then ordered a special screening test for celiac disease. The test came back positive, so we were then sent for biopsies at the children's hospital a week later. The biopsy confirmed celiac disease, and Madison was put straight on a gluten-free diet.

We are still getting used to what foods she can and can't eat, but at least we know what’s wrong with her and can think more positive for the future.

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