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Diana's Story

 
11/9/2011

From a toddler, TJ would tell me in his own way he didn't feel good and wanted to lay down and take a nap. For the past 10 years, he has had asthma, chronic sinus infections, stomachaches and debilitating headaches.

He has seen every specialist including allergists, cardiologists, neurologists and ADHD specialists, not to mention the four custody evaluative/court appointed specialists during our 4-year custody battle. Everyone labeled him as anxious and even his dad never believed him, blamed me for his stresses, and said he was just defiant and needed to be disciplined. Sadly, the ongoing court battles made it a prolonged issue that was more difficult to figure out.

After the final court date, I decided I would turn all my efforts to finding out what was wrong with TJ.  I sat up till 4 a.m. in a cabin trying to Google his symptoms on my iPad.  I found a website about misdiagnoses and a mother’s story that mirrored mine. Someone had suggested she test her son for celiac. That took me down the path, and 3 months later, he is diagnosed.  

After being gluten-free for a month, he grew from 6th to 11th percentile and felt so much better.  We have a ways to go and challenges to face in a divorced family with new issues with the disease, but I am so grateful we can have a diagnosis to work with to help this wonderful young man heal the wounds inside and outside for a brighter future.  He is completely on board with the new lifestyle and is learning to manage it and make good decisions.  I am so proud of him!

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