I was diagnosed with dermatitis herpetiformis (DH) and celiac because, after 18 years of unexplained rashes that would come and go, my dermatologist actually got educated about it. The next time I came in with my rash (always in different place on my body), he got all excited and told me about DH, took a biopsy, and viola!
Finally, I knew what was wrong with me. I had the celiac blood work done, followed by a biopsy and was confirmed I had traditional celiac with flattened villi, along with DH. I tried Dapsone and was violently ill, so I had to suffer with my rash until it finally went away after about 6 months of eating totally gluten-free.
One of the most wonderful things about going gluten-free is that I feel good. I never realized I had a stomachache all the time, sometimes terribly, but always there, until it completely went away. Yea!
My mom then was tested and she too is celiac. My sister and brother both have been diagnosed with multiple sclerosis, but won't get tested for celiac. It makes me sad because I think they also have it, but they don't believe me when I say they could perhaps relieve some of their symptoms by going gluten-free.