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Celiac College Students Experiences Needed

3/22/2010

Rebecca Panzer, a graduate student and dietitian at Emerson College in Boston is developing a gluten free guide to college under the direction of renowned celiac expert Dr. Daniel Leffler, Director of Clinical Research and gastroenterologist at the Beth Israel Deaconess Medical Center.

They currently are seeking the opinions and experience of celiac patients between the ages of 18 to 24 who are planning to or have already moved away from home (either for college or not).

Volunteers will need to complete one or all of the following between March 1st and April 9th:

  • 20-30 minute telephone interview

  • 60 minute focus group (March 20th on the Emerson College Campus, 120 Boylston St, Boston, MA-complete with a gluten free lunch!)

  • 1 focus group for people who have not moved away from home

  • 1 focus group for people who have already moved away

  • 15-20 minute online survey (chance to win 1 of 8, $20 iTunes gift certificates)

To access the survey, please clink on the link below or copy and paste it into your browser: http://www.zoomerang.com/Survey/?p=WEB22AAA4C3U7J (NOTE: Survey can only be taken once per computer)

The study will explore topics such as:

  • Preparation to manage the gluten free diet independently

  • Challenges encountered in sticking to the gluten free diet

  • Preferred content and format for receiving information about celiac disease

If you (or someone you know with celiac disease) are interested in participating in this study or if you have any questions regarding the study, please contact me at:

 Rebecca Panzer, R.D., L.D.

rbka.panzer@gmail.com

phone: 1-339-293-7377

 

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