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Celiac Disease and Family Testing Survey

4/9/2013

In 2012, the National Foundation for Celiac Awareness (NFCA) conducted research in conjunction with Emerson College and The Celiac Center at Beth Israel Deaconess Medical Center to learn more about the attitudes and beliefs about testing for celiac disease among family members of persons diagnosed with this autoimmune condition. The research, a combination of an online survey, focus groups and interviews, was successful in that it provided informative details about this lesser studied area.

Today, we are pleased to announce that NFCA is continuing this research in collaboration with The Jefferson Celiac Center of Thomas Jefferson University Hospitals, Philadelphia. Together, NFCA and The Jefferson Celiac Center now ask you to complete a survey that aims to determine what recommendations patients with celiac disease receive from their physicians regarding family member testing.

Patient participation in celiac disease research is critical in helping physicians and researchers to advance science. Your participation is invaluable!

 Please take five to ten minutes to complete this brief questionnaire.

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