NFCA, in collaboration with Beth Israel Deaconess Medical Center in Boston, Massachusetts, is conducting research on the perceptions of celiac disease among families where a member has been medically diagnosed. This research seeks to uncover the attitudes and beliefs of at-risk family members who have not been tested for the disease.
The study’s phase 2, an online survey, is now open. The survey will be available for participation until Monday, April 9, 2012.
All survey participants* will be entered into a raffle in which one lucky survey participant will win a gluten-free prize pack from the USA Rice Federation and Zatarain’s. Up for grabs are:
One Digital Aroma Rice Cooker from the USA Rice Federation, a $120 value.
An assortment of gluten-free products from Zatarain’s, a $30 value. Mixes include: The Jambalaya and Dirty Rice varieties, plus Spanish Rice, Long Grain and Wild Rice, Yellow Rice, Garden Vegetable Rice, Rice Pudding and more!
*Survey participants must opt-in in order to be entered into the drawing.
To be eligible participants must:
Be 21 years or older
Speak fluent English
Have a biological relative (parent, sibling, child, aunt, uncle, grandparent, niece, nephew, cousin or half-sibling) who has been diagnosed with celiac disease
NOT have been tested for celiac disease
The survey is a 36-item questionnaire that takes between 10-15 minutes to complete.
Or copy and paste this link: tinyurl.com/bm5vo58
If you are not eligible to take the survey, do you know of someone who is?
To refer someone potentially eligible to take the survey, please email the researcher at firstname.lastname@example.org. Make sure to include an email address where you or your referral can be reached.
Research Notice: Family Members of Persons with Celiac Disease Wanted for a Research Study - Part 1