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Free Webinars from NFCA

 

Gluten-Free Lifestyle Webinars header

NFCA Webinars are geared for those with celiac disease and other gluten-related disorders as well as the dietitians and providers who serve them. Thanks to the support of sponsors, these Webinars continue to be free of charge!

If you have a Webinar idea or topic you'd like to see discussed, please contact webinars@celiaccentral.org.

Note: A recording of each Webinar will be posted along with the Webinar slides within 72 hours after the live Webinar ends. To download recorded Webinars and slides, visit the Archived Webinars page.
 

Click here to see the 2015 webinar schedule.

Where We Stand: Understanding the Celiac Disease Patient’s Wants and Needs
Tuesday, July 14, 2015
2 p.m. to 3 p.m. EDT/11 a.m. to 12 p.m. PDT

The National Foundation for Celiac Awareness (NFCA) held its first ever Research Summit in the spring of 2015 where we collaborated with people in many different fields and worked together to find out what people with celiac disease really need in order to live better, longer. Now, we're bringing this conversation to you. Join in our conversation with patients and experts to learn about these needs. 

Hear Erica Dermer, and Chad Shaffer, MD, FAAFP talk about their own biggest needs as people diagnosed with celiac disease and learn about how doctors think about these needs from Ciaran Kelly, MD. Most importantly, learn how better understanding these needs can help to shape the future of celiac disease research.

About the Panelists

CiarĂ¡n Kelly HeadshotCiarán Kelly, MD

Dr Ciarán P Kelly, is Professor of Medicine at Harvard Medical School and Director of Gastroenterology Training at Beth Israel Deaconess Medical Center (BIDMC), Boston, Massachusetts USA.  Dr. Kelly earned his medical degree from Trinity College in Dublin, Ireland where he was a Foundation Scholar and recipient of numerous academic awards.  Dr Kelly has also received postgraduate clinical and research awards from the Crohn's and Colitis Foundation of America, the American Gastroenterological Association and the National Institutes of Health.  He is an American Gastroenterology Association Fellow and a Fellow of the American College of Gastroenterology. 

Dr Kelly has engaged in patient care and research in Celiac disease for more than 20 years.  In 2004 he was a founder of the Celiac Center at BIDMC and serves as its Director.  In 2013 he co-founded the Celiac Research Program at Harvard Medical School. 

Dr Kelly is an internationally recognized expert in the diagnosis and management of celiac disease and, in his clinical practice, specializes in difficult-to-treat enteropathy.  He also leads research programs on the pathogenesis of celiac disease, its diagnosis and new approaches to treatment.  He has served as a committee member of the NIH, Center for Scientific Review as well as FDA, CDC and NIH committees on celiac disease and C. difficile infection.  Dr Kelly is the author of more than 200 clinical and basic research book chapters, invited reviews, and original research articles appearing in medical and scientific journals including Gastroenterology, Vaccine, Infection & Immunity, The Journal of Clinical Investigation, The Lancet and The New England Journal of Medicine

Chad Shaffer HeadshotChad Shaffer, MD, FAAFP

Dr. Shaffer is a retired Family Physician. He is a graduate of the University of Missouri-Kansas City Medical School.  Upon completion of residency, he practiced Family Medicine and Obstetrics with his wife Suzanne who is also a Family Physician.

He returned to his medical school after private practice to begin an academic career in Family Medicine were he served as an Assistant Professor of Medicine at the Department of Community and Family Medicine.

Dr. Shaffer practiced full scope Family Medicine including High Risk Obstetrics and Operative Obstetrics.  Recognizing the huge potential of an electronic medical record, he became a champion for the EMR and developed a pivotal role in Medical Informatics.  He served as the Chief Medical Information Officer for Truman Medical Centers in Kansas City where he enjoyed the challenge and success of migrating to a full electronic health record.  Utilizing strategies such as Lean Six Sigma he engaged directly with other nurses, clinicians, and administrators for a transformation of the medical informatics culture within the entire organization.

About 5 years ago, Dr. Shaffer became seriously ill with a "mysterious" illness that forced him to retire from the practice of medicine.  He dropped to 100 pounds, lost his ability to walk, was confined to a wheelchair, developed cardiac arrhythmias and ultimately had a cardiac arrest. And then he got his diagnosis.

Seriously? Celiac disease? Seriously.

Dr. Shaffer had a serious autoimmune disease, known as celiac disease refractory type II. He was confronted with T-cell clone cells, a precursor to lymphoma, on his intestinal biopsies.  In retrospect, Dr. Shaffer had undiagnosed celiac disease almost all of his life. He is a representative poster patient for the asymptomatic, undiagnosed, long standing celiac disease patient that developed serious life threatening complications.

Embarking on the most challenging battle of his entire life and career, he has become an advocate and resource for other celiac patients and celiac disease awareness.

Dr. Shaffer now enjoys his good days when he can and gladly takes the bad days as a blessing too.  His favorite saying is "Some days the Dragon wins and some days the Dragon Slayer wins".

Although his ongoing medical condition prevents him from practicing medicine, he loves to share his experience and knowledge as a physician and patient with celiac disease.

Erica Dermer HeadshotErica Dermer, Celiac and the Beast

Erica, better known to the food allergic/celiac community as Celiac and the Beast, is a blogger, writer, and editor in the gluten-free space. After a difficult and long diagnosis process, she found catharsis in writing about her experiences with gluten-free life online. In 2013, she published "Celiac and the Beast: A Love Story Between a Gluten Free Girl, Her Genes, and a Broken Digestive Tract" (available on Amazon.com and all major book retail sites). She wants to help every celiac and every gluten sensitive individual through the diagnosis process and would like to help living life gluten-free in a world full of wheat as easy as possible. 

View Webinar System Requirements

2015 Webinar Schedule

 

NFCA webinar logoContinuing Education Credit: Registered Dietitians (RD) and Dietetic Technicians, Registered (DTR) are able to participate in this live 60-minute webinar to obtain CE credits regardless of this program's approval status as long as the webinar is professional in nature. NFCA will provide a certificate as proof of participation for each webinar. Attendees must complete the program evaluation/follow-up survey in order to access this certificate. Program participants will receive a link to complete the program evaluation/follow-up survey from NFCA in the days following the webinar. Participants must complete this survey and download the certificate before the date of the following month's webinar. See Webinar Schedule.

If you have questions about earning continuing education credit for webinars, please contact the Commission on Dietetic Registration, 800-877-1600 x5500.

Please note that RDs and DTRs are not permitted to claim credits by viewing archived webinars. Only those who register and attend live webinars will receive the opportunity to obtain continuing education credits. Each participant must register for and log in to the webinar in order to receive credit. In the case of group viewing, only the registered and logged in participant will receive credit for the webinar.

Disclaimer: The views expressed during webinars are those of the guest speakers and are not necessarily attributable to the National Foundation for Celiac Awareness.

Webinar Follow-Emails:  To ensure that you receive our follow-up email, please add the National Foundation for Celiac Awareness (National_Foundation_for_Celiac_A@mail.vresp.com) to your email safe senders list, address book or contact list. Please make sure to enter your email address correctly when registering for each webinar, as we will use that email address when sending our follow-up email.

Please note that if you have unsubscribed from any of NFCA's emails, including the monthly e-newsletter, you will not be able to receive follow-up emails at that email address. You will need to register for webinars using a different email address.  Should you need further assistance, please e-mail webinars@celiaccentral.org.

 

 

 
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